#adenomyosis Instagram Photos & Videos

adenomyosis - 89k posts

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We looked inside some of the posts tagged with #adenomyosis and here's what we found interesting.

Inside 71 Posts

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30 minutes
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3
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2/71
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69/71

Hashtag Popularity

Shed society's unrealistic standards, not pounds✨
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Your body is enough, YOU are enough. You don't need to change the way you look to fit society's 'perfect body' standards. There is no 'perfect body', there are only 'bodies' - beautiful, living bodies.
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#endowarrior #endometriosis #endometriosisawareness #endometriosissurgery #endometriosispain #laproscopy #endo #endobabe #endogirlgang #women #positivity #health #endometriosisbloat #endometriosiswarrior #endometriosissucks #adeno #adenomyosis #adenomyosisawareness #chronicillness #endoproblems #illness #fibromyalgia #selflove #bodypositive #endowarrior #eatingdisorderrecovery #ed

Shed society's unrealistic standards, not pounds✨
~
Your body is enough, YOU are enough. You don't need to change the way you look to fit society's 'perfect body' standards. There is no 'perfect body', there are only 'bodies' - beautiful, living bodies.
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#endowarrior #endometriosis #endometriosisawareness #endometriosissurgery #endometriosispain #laproscopy #endo #endobabe #endogirlgang #women #positivity #health #endometriosisbloat #endometriosiswarrior #endometriosissucks #adeno #adenomyosis #adenomyosisawareness #chronicillness #endoproblems #illness #fibromyalgia #selflove #bodypositive #endowarrior #eatingdisorderrecovery #ed
17 5 23 February, 2020

“No matter how ‘busy’ a person is, if they really care, they will always find the time for you.” Your call is very very important to us. Please leave your name and number and we will definitely get back to you as soon as possible. Also, you can email us on info@ghealth.com.au for an appointment and we will do our best to find a time convenient to you. Thank you all for your patience 💐 .
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#fertility #IVF #gynaecology #obstetrics #miracleshappen #caesarean #endo #fertilitydoctor #naturalbirth #endometriosis #fibroids #adenomyosis #dysmenorrhea #oneofthebestdoctors #eggfreezing #eggcollection #eggretrieval #pcos #frozenembryo #brisbanedoctor #brisbane #springfield #brisbane #surgeonsofinsta #westfieldnorthlakes #women #dads #mums #Sunnybank #emailus #leaveamessage

“No matter how ‘busy’ a person is, if they really care, they will always find the time for you.” Your call is very very important to us. Please leave your name and number and we will definitely get back to you as soon as possible. Also, you can email us on info@ghealth.com.au for an appointment and we will do our best to find a time convenient to you. Thank you all for your patience 💐 .
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#fertility #IVF #gynaecology #obstetrics #miracleshappen #caesarean #endo #fertilitydoctor #naturalbirth #endometriosis #fibroids #adenomyosis #dysmenorrhea #oneofthebestdoctors #eggfreezing #eggcollection #eggretrieval #pcos #frozenembryo #brisbanedoctor #brisbane #springfield #brisbane #surgeonsofinsta #westfieldnorthlakes #women #dads #mums #Sunnybank #emailus #leaveamessage
2 0 23 February, 2020

This time last year I woke up in the snowy mountains, surrounded by family and love as I got ready to marry my best friend. It was hands down the best day of my life so far. Here we are a year later, a year stronger. Here’s to my wife getting home soon ❤️ ......................................................
#endometriosis #endowarrior #endosupport #endometriosissurgery #endometriosisawareness #adenomyosis #adeno #adenomyosisawareness #chronicillness #chronicpain #invisibleillness #invisibleillnessawareness #butyoudontlooksick #realfaceofendo #chronicillnesswarrior #endoqueen #militarylife #militaryspouse #militaryhomecoming

This time last year I woke up in the snowy mountains, surrounded by family and love as I got ready to marry my best friend. It was hands down the best day of my life so far. Here we are a year later, a year stronger. Here’s to my wife getting home soon ❤️ ......................................................
#endometriosis #endowarrior #endosupport #endometriosissurgery #endometriosisawareness #adenomyosis #adeno #adenomyosisawareness #chronicillness #chronicpain #invisibleillness #invisibleillnessawareness #butyoudontlooksick #realfaceofendo #chronicillnesswarrior #endoqueen #militarylife #militaryspouse #militaryhomecoming
19 1 23 February, 2020

Just in case nobody has asked you this today 💛
Really hope that you're all feeling ok today, if you're not & you want to chat then my DM's are always open xx
#endo #endometriosis #endowarriors #endosisters #endosucks #endosupport #endometriosisawareness #endtheisolation #endobuddies #wereallinthistogether #adenomyosis #chronicillness #chronicpain #invisibleillness #alwayshereforyou #bekind #spreadlove

Just in case nobody has asked you this today 💛
Really hope that you're all feeling ok today, if you're not & you want to chat then my DM's are always open xx
#endo #endometriosis #endowarriors #endosisters #endosucks #endosupport #endometriosisawareness #endtheisolation #endobuddies #wereallinthistogether #adenomyosis #chronicillness #chronicpain #invisibleillness #alwayshereforyou #bekind #spreadlove
15 4 23 February, 2020

Out for lunch today In Richmond, Melbourne with my mum... Picked the healthiest meal i could find... Was so yummy! I ditched the sauce was a bit sweet... #lowcarbdiet #lowcarbhighfat #lchf #relax #lifestyle #weightloss #weightlossjourney #fat #healthy #fasting #food #yummy #selflove #foodporn #photooftheday #tbt #mummy #australia #beach #lowcarb #carbs #endometriosis #adenomyosis #womenshealth #caloriecounting #weight #fast800 #fitness #positive #facemask

Out for lunch today In Richmond, Melbourne with my mum... Picked the healthiest meal i could find... Was so yummy! I ditched the sauce was a bit sweet... #lowcarbdiet #lowcarbhighfat #lchf #relax #lifestyle #weightloss #weightlossjourney #fat #healthy #fasting #food #yummy #selflove #foodporn #photooftheday #tbt #mummy #australia #beach #lowcarb #carbs #endometriosis #adenomyosis #womenshealth #caloriecounting #weight #fast800 #fitness #positive #facemask
11 0 23 February, 2020

The hardest thing for me is having to wrap my head around the fact I will have endometriosis for the rest of my life not knowing if I’ll ever feel the same not knowing where my endo will grow next, 5 surgeries has taken it out of me but all I can do is keep fighting this horrible illness! I’m grateful to all you endo warriors for your support since I went so public with my daily struggle #mystory #adenomyosis #endometriosisawareness #endometriosis #chronicillness #chronicpain #invisibleillness #sydneyendometriosis #fitnessjourney #mystruggle #pcos #spoonie #healthjourney #endo #endowarrior #endometriosissupport #healthblogger #mentalhealthawareness #infertility #myjourney #recovery #blogger #1in10woman #womanshealth #pelvicpain #ttc #fertilityjourney 🎗

The hardest thing for me is having to wrap my head around the fact I will have endometriosis for the rest of my life not knowing if I’ll ever feel the same not knowing where my endo will grow next, 5 surgeries has taken it out of me but all I can do is keep fighting this horrible illness! I’m grateful to all you endo warriors for your support since I went so public with my daily struggle #mystory #adenomyosis #endometriosisawareness #endometriosis #chronicillness #chronicpain #invisibleillness #sydneyendometriosis #fitnessjourney #mystruggle #pcos #spoonie #healthjourney #endo #endowarrior #endometriosissupport #healthblogger #mentalhealthawareness #infertility #myjourney #recovery #blogger #1in10woman #womanshealth #pelvicpain #ttc #fertilityjourney 🎗
35 5 23 February, 2020

One of my suggestions in the box I put on my stories this week was about alcohol! And since I went to a bbq today, I thought I’d answer this one. I used to drink a lot when I was younger. But have never loved it and at multiple points have thought I was allergic to it. I just felt sick all the time. One drink or five. From January 2018 to Juneish (nice word Jess) 2019, I went without a drink. I was on so many tablets and pain killers that I just couldn’t “punish” my body anymore than I already was. I don’t have an addictive personality at all- I can quit anything cold turkey - maybe except hot chips!! So in saying that I definitely do love a glass of red wine or a gin and tonic every now and then. Not too often, because I find it to really induce my anxiety the next day and just generally feel down the next day too. Adenomyosis is an inflammatory disease and I don’t think alcohol helps me live and thrive to the best of my ability. So long story short - I drink every once in a while. Like most of the advice I give on here, you do you! I think we all know excessive alcohol consumption isn’t great 🤣💜

One of my suggestions in the box I put on my stories this week was about alcohol! And since I went to a bbq today, I thought I’d answer this one. I used to drink a lot when I was younger. But have never loved it and at multiple points have thought I was allergic to it. I just felt sick all the time. One drink or five. From January 2018 to Juneish (nice word Jess) 2019, I went without a drink. I was on so many tablets and pain killers that I just couldn’t “punish” my body anymore than I already was. I don’t have an addictive personality at all- I can quit anything cold turkey - maybe except hot chips!! So in saying that I definitely do love a glass of red wine or a gin and tonic every now and then. Not too often, because I find it to really induce my anxiety the next day and just generally feel down the next day too. Adenomyosis is an inflammatory disease and I don’t think alcohol helps me live and thrive to the best of my ability. So long story short - I drink every once in a while. Like most of the advice I give on here, you do you! I think we all know excessive alcohol consumption isn’t great 🤣💜
35 1 23 February, 2020

I’m a super excited (& anxious) to be saying good-bye to my uterus. It is massively cramping my style 😆 66 days and counting!!!!!!! #adenomyosis #endometriosis #fibromyalgiaawareness #hysterectomy #fibromyalgia #endometriosisawareness #endowarrior #adenomyosispain #adenomyosisawareness #freedom

I’m a super excited (& anxious) to be saying good-bye to my uterus. It is massively cramping my style 😆 66 days and counting!!!!!!! #adenomyosis #endometriosis  #fibromyalgiaawareness #hysterectomy #fibromyalgia #endometriosisawareness #endowarrior #adenomyosispain #adenomyosisawareness #freedom
24 1 23 February, 2020

NATIONAL ENDOMETRIOSIS ACTION PLAN •

In 2017 the first national plan for endometriosis was developed by the Australian government.
The national action plan emerged after efforts put forward by advocacy groups, patients, researchers and clinicians rallied to have endometriosis recognised as a chronic condition that has a massive burden on health.
It is highlighted that there is a growing need for recognition, awareness, education, diagnosis, research and treatment in regards to endometriosis and chronic pelvic pain.

The plan also encompasses conditions such as PCOS, adenomyosis, pelvic inflammatory disease and period pain.
The plan recognises that Endo is an individualised condition, while also addressing myths around endo; debunking that period pain is normal, a hysterectomy is a cure, pregnancy will ‘fix’ endo, you can’t fall pregnant with endo and that everyone with endo has severe pain.
It’s also calls attention to the serve delay in diagnosis, stating that the variety of symptoms and the highly individualistic nature of the disease can make endo harder to diagnosis.
The plan calls for greater awareness and education through a stronger appreciation of endo being a chronic and complex condition and engaging with schools about endometriosis; improved access to appropriate services and support for further research relevant to need by increasing clinical trials and investing into agreed research priorities.
A section of the plan is dedicated to patients living with endometriosis in their own words, which I personally think is such an important aspect of highlighting this disease.
The plan aims to achieve a tangible improvement in the quality of life for individuals living with endometriosis, including a reduction in the impact and burden of disease at individual and population levels. (I’ll be posting some snippets of the plan on my story). Artwork: @spoonie_village
#endometriosis #endo #endometriosisawareness #pcos #pcosawareness #invisibleillness #chronicillness #chronicpain #1in100 #pelvicpain #periodproblems #adenomyosis #adenomyosisawareness #reproductivehealth

NATIONAL ENDOMETRIOSIS ACTION PLAN •

In 2017 the first national plan for endometriosis was developed by the Australian government. 
The national action plan emerged after efforts put forward by advocacy groups, patients, researchers and clinicians rallied to have endometriosis recognised as a chronic condition that has a massive burden on health. 
It is highlighted that there is a growing need for recognition, awareness, education, diagnosis, research and treatment in regards to endometriosis and chronic pelvic pain.

The plan also encompasses conditions such as PCOS, adenomyosis, pelvic inflammatory disease and period pain. 
The plan recognises that Endo is an individualised condition, while also addressing myths around endo; debunking that period pain is normal, a hysterectomy is a cure, pregnancy will ‘fix’ endo, you can’t fall pregnant with endo and that everyone with endo has severe pain. 
It’s also calls attention to the serve delay in diagnosis, stating that the variety of symptoms and the highly individualistic nature of the disease can make endo harder to diagnosis. 
The plan calls for greater awareness and education through a stronger appreciation of endo being a chronic and complex condition and engaging with schools about endometriosis; improved access to appropriate services and support for further research relevant to need by increasing clinical trials and investing into agreed research priorities. 
A section of the plan is dedicated to patients living with endometriosis in their own words, which I personally think is such an important aspect of highlighting this disease. 
The plan aims to achieve a tangible improvement in the quality of life for individuals living with endometriosis, including a reduction in the impact and burden of disease at individual and population levels. (I’ll be posting some snippets of the plan on my story). Artwork: @spoonie_village 
#endometriosis #endo #endometriosisawareness #pcos #pcosawareness #invisibleillness #chronicillness #chronicpain #1in100 #pelvicpain #periodproblems #adenomyosis #adenomyosisawareness #reproductivehealth
23 3 23 February, 2020

This is so important! 💯
To listen to your body and recognize when it's time to slow down and put some time aside to focus on your wellbeing & rest when needed. Otherwise I know all to well that my body will pick it for me!

For the past week my MS has been flaring and I've been struggling with vertigo,migraines,fatigue & nausea so I'm listening to my body and slowing down!
We are in the middle of summer here in New Zealand and 30° degree heat and MS does not go well together! 😅🥵
~A friendly reminder to listen to your body and be kind to yourself. You're doing the best you can ❤

This is so important! 💯
To listen to your body and recognize when it's time to slow down and put some time aside to focus on your wellbeing & rest when needed. Otherwise I know all to well that my body will pick it for me!

For the past week my MS has been flaring and I've been struggling with vertigo,migraines,fatigue & nausea so I'm listening to my body and slowing down! 
We are in the middle of summer here in New Zealand and 30° degree heat and MS does not go well together! 😅🥵
~A friendly reminder to listen to your body and be kind to yourself. You're doing the best you can ❤
47 4 23 February, 2020

I picked up these documents Friday with my medicinal cannabis & just noticed these handwritten words on the back of my official govt cannabis approval documents & cannabis prescription (likely written by the pharmacist?)...
- Cavernous Haemangioma
- Uterine pain? (idiopathic)
- Lumbar radiculopathy
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“IDIOPATHIC”?!?! Meaning no known cause.
Umm bitch, this pain has a cause.
It’s called Adenomyosis. Says so right on my diagnostic report had you bothered to read it.
Why am I shitty about this? 1. it discounts a persons often YEARS of pain. 2. It proves time & time again that med professionals don’t bother to read (or believe) the reports & will continue to put their own spin on things.
It’s not right, it’s dismissive, nor is it fair to the people living with these conditions. “Idiopathic”...
I’ll fucking give you idiopathic!
Let me throat punch you and then tell you the pain you experience from said throat punch is idiopathic & has no known cause.
#adenomyosis #endometriosis #pain #chronicpain #periodproblems #periods #uterusproblems

I picked up these documents Friday with my medicinal cannabis & just noticed these handwritten words on the back of my official govt cannabis approval documents & cannabis prescription (likely written by the pharmacist?)...
- Cavernous Haemangioma
- Uterine pain? (idiopathic)
- Lumbar radiculopathy
.
.
.
“IDIOPATHIC”?!?! Meaning no known cause. 
Umm bitch, this pain has a cause. 
It’s called Adenomyosis. Says so right on my diagnostic report had you bothered to read it. 
Why am I shitty about this? 1. it discounts a persons often YEARS of pain. 2. It proves time & time again that med professionals don’t bother to read (or believe) the reports & will continue to put their own spin on things. 
It’s not right, it’s dismissive, nor is it fair to the people living with these conditions. “Idiopathic”...
I’ll fucking give you idiopathic! 
Let me throat punch you and then tell you the pain you experience from said throat punch is idiopathic & has no known cause. 
#adenomyosis #endometriosis #pain #chronicpain #periodproblems #periods #uterusproblems
5 0 23 February, 2020

When something that’s supposed to be pleasurable brings pain 😣. ‘Dyspareunia’ is the medical term for pain during sex. It frequently occurs in people with Adenomyosis/Endometriosis because penetration and other movements associated with intercourse can stretch and pull the endometrial growths & nudge the already tender Adenomyosis filled uterus.
This pain varies from person to person and may depend on the type of intercourse that’s had. Some experience pain only during deep penetration, some experience pain no matter the depth of penetration, while others experience pain after sex.
Me, I can experience both during & post but generally I experience pain afterwards. After sex I’ll have cramping and back pain, just like ovulation or having a period & sometimes I’ll experience spotting. This occurs no matter where in my cycle I am & no matter the position used for sex. For me, there’s no one position better than the other that alleviates pain from intercourse. They’re all the same for me.
For me, having a decent dose of THC prior to sex not only enhances the pleasurable feelings of intercourse, brings greater connection to my body & husband but it also relaxes my muscles allowing a more open & relaxed experience, as well as providing pain relief for any pain that should occur during or post sex. What also brings me some relief post sex is a heat pack, gentle yoga stretches along with some gentle lower abdo & back massages with magnesium cream.
Do you experience pain with sex?
What do you do to help alleviate it?
Do you find a certain position better for you to reduce pain? .
#adenomyosis #endometriosis #sexandadenomyosis #sexandendometriosis #dyspareunia #painfulsex #intercourse #painfulintercourse #cannabis #thcforpain #cannabiscommunity #medicinalcannabis #cannabisandsex #thc #pain

When something that’s supposed to be pleasurable brings pain 😣. ‘Dyspareunia’ is the medical term for pain during sex. It frequently occurs in people with Adenomyosis/Endometriosis because penetration and other movements associated with intercourse can stretch and pull the endometrial growths & nudge the already tender Adenomyosis filled uterus.
This pain varies from person to person and may depend on the type of intercourse that’s had. Some experience pain only during deep penetration, some experience pain no matter the depth of penetration, while others experience pain after sex. 
Me, I can experience both during & post but generally I experience pain afterwards. After sex I’ll have cramping and back pain, just like ovulation or having a period & sometimes I’ll experience spotting. This occurs no matter where in my cycle I am & no matter the position used for sex. For me, there’s no one position better than the other that alleviates pain from intercourse. They’re all the same for me. 
For me, having a decent dose of THC prior to sex not only enhances the pleasurable feelings of intercourse, brings greater connection to my body & husband but it also relaxes my muscles allowing a more open & relaxed experience, as well as providing pain relief for any pain that should occur during or post sex. What also brings me some relief post sex is a heat pack, gentle yoga stretches along with some gentle lower abdo & back massages with magnesium cream. 
Do you experience pain with sex?
What do you do to help alleviate it? 
Do you find a certain position better for you to reduce pain? .
#adenomyosis #endometriosis #sexandadenomyosis #sexandendometriosis #dyspareunia #painfulsex #intercourse #painfulintercourse #cannabis #thcforpain #cannabiscommunity #medicinalcannabis #cannabisandsex #thc #pain
17 0 23 February, 2020

Crawled into bed in agony today with a huge flare up on the way. Took everything I physically could. Pain is still there and now I can’t sleep. I think personally it’s a mixture of the pain meds making me alert and not drowsy, and the pain that’s keeping me awake. I’ve tried getting out of bed to read, or watch TV, massages my face and then my legs and feet, nothing. What do you use to help you sleep?
#endometriosis #endometriosisawareness #endolife #theendolife #adenomyosis #adenomyosisawareness #endometriosissucks #endometriosisuk #endometriosissupport #adenomyosissupport #healthblog #ukblog #endowarrior #endosister #adenosister #spoonie #chronicillness #chronicpain #fedup #endoblog #prostap #earlymenopause #discoverunder5k #discoverunder10k #discoverunder1k #mirenacoil #coil #pain #chronicillness #chronicpain #painsomnia

Crawled into bed in agony today with a huge flare up on the way. Took everything I physically could. Pain is still there and now I can’t sleep. I think personally it’s a mixture of the pain meds making me alert and not drowsy, and the pain that’s keeping me awake. I’ve tried getting out of bed to read, or watch TV, massages my face and then my legs and feet, nothing. What do you use to help you sleep? 
#endometriosis #endometriosisawareness #endolife #theendolife #adenomyosis #adenomyosisawareness #endometriosissucks #endometriosisuk #endometriosissupport #adenomyosissupport #healthblog #ukblog #endowarrior #endosister #adenosister #spoonie #chronicillness #chronicpain #fedup #endoblog #prostap #earlymenopause #discoverunder5k #discoverunder10k #discoverunder1k #mirenacoil #coil #pain #chronicillness #chronicpain #painsomnia
21 1 23 February, 2020

Hydromorphone & Vimovo

This is what I was prescribed after surgery for pain management

I haven’t taken narcotics in years because I’ve tried most (Naproxen, Tylenol #3, Toradol, Diclofenac, Celebrex, Tramadol, Oxycodone) & none have been effective aside from extra strength Advil gel caps surprisingly

While in hospital, I was given these meds regularly but wasn’t before discharge; with travel & time to get the prescription filled, it was almost 7 hours later when I got my next dose

By then I was anxious, angry, & cried because that’s what pain does

Many people avoid pain meds for one reason or another; I’ve heard “I don’t like how it makes me feel,” “I don’t need it,” “I only need it for the first day,” “I don’t want to get addicted,” etc.

But pain management is a big part of healing after surgery. No pain, no gain does not work in this situation!

In hospital, there is an order in which pain meds are given, how meds are weaned, which meds to give to manage side effects, & so on

So the first couple of days after surgery, you want to have a med schedule

Write them down, check them off because there will be times you forget what you just took & then spend the next 10 minutes sitting there trying to figure it out (& you probably won’t)

Timing of pills is very important in management of pain, especially overnight

Many people find they wake up in pain & it’s because they didn’t take meds overnight

For the first 2 days, I set my phone alarms accordingly (i.e. every 4 hours to take Hydromorphone) & woke up overnight to take meds

I was diligent with that part but not so much with managing the side effects

I forgot how nauseous & constipated Hydromorphone makes me

So day 2-5 were not fun because I had to stop taking narcotics as often, started Tylenol, increased edibles, & incorporated gravol, docusate, & sennokot to help with the side effects

Two weeks later, I’ve stopped taking prescription meds, occasionally use Advil & Tylenol but mostly cannabis to manage the pain & other symptoms

Pain control & wound healing go hand in hand & this relationship is extremely important to respect in order to recover well

#endointhe604 💛

Hydromorphone & Vimovo
•
This is what I was prescribed after surgery for pain management
•
I haven’t taken narcotics in years because I’ve tried most (Naproxen, Tylenol #3, Toradol, Diclofenac, Celebrex, Tramadol, Oxycodone) & none have been effective aside from extra strength Advil gel caps surprisingly
•
While in hospital, I was given these meds regularly but wasn’t before discharge; with travel & time to get the prescription filled, it was almost 7 hours later when I got my next dose
•
By then I was anxious, angry, & cried because that’s what pain does
•
Many people avoid pain meds for one reason or another; I’ve heard “I don’t like how it makes me feel,” “I don’t need it,” “I only need it for the first day,” “I don’t want to get addicted,” etc.
•
But pain management is a big part of healing after surgery. No pain, no gain does not work in this situation!
•
In hospital, there is an order in which pain meds are given, how meds are weaned, which meds to give to manage side effects, & so on
•
So the first couple of days after surgery, you want to have a med schedule
•
Write them down, check them off because there will be times you forget what you just took & then spend the next 10 minutes sitting there trying to figure it out (& you probably won’t)
•
Timing of pills is very important in management of pain, especially overnight
•
Many people find they wake up in pain & it’s because they didn’t take meds overnight
•
For the first 2 days, I set my phone alarms accordingly (i.e. every 4 hours to take Hydromorphone) & woke up overnight to take meds
•
I was diligent with that part but not so much with managing the side effects
•
I forgot how nauseous & constipated Hydromorphone makes me
•
So day 2-5 were not fun because I had to stop taking narcotics as often, started Tylenol, increased edibles, & incorporated gravol, docusate, & sennokot to help with the side effects
•
Two weeks later, I’ve stopped taking prescription meds, occasionally use Advil & Tylenol but mostly cannabis to manage the pain & other symptoms
•
Pain control & wound healing go hand in hand & this relationship is extremely important to respect in order to recover well
•
#endointhe604 💛
31 2 23 February, 2020

TRIGGER WARNING - Eating Disorders

F O O D ... I have a really complicated relationship with food.
Some of it has to do with bad food memories, intolerances, nausea from pain or anxiety.
I have noticed last year and this year in particular, my nausea has gotten worse so my anxiety towards eating properly or at all has too.
I never thought I had an eating disorder as such, because I'm fat. But there is definitely an issue here.
I find that the easiest thing for me to eat without anxiety is tomato on toast, plain chips or fruit. That's not ideal obviously.. I'm working with my Natropath on an eating plan to heal my gut due to all the damage medications has done as well as my intolerances which has caused leaky gut syndrome. I also have very low iron.
This means I'm having to challenge myself and my eating anxieties.
I made a meal today which causes me bad food memories but my husband loves spaghetti and its the easiest thing to include some iron rich foods. I still haven't been able to eat it. Every time I think about it, I feel queasy.
What usually happens is I will snack on foods like biscuits (cookies) or fruit until I'm really, really hungry enough and I will binge.
I really need to go back to my psychologist, but I have been trying to tell myself that food is medicine and it won't hurt me. Sometimes it takes some retraining of the brain to push through these negative thoughts and behaviours.
#chronicpain #fibromyalgia #chronicillness #adenomyosis #eatingdisorder #disability #disabledbutnotenough

TRIGGER WARNING - Eating Disorders

F O O D ... I have a really complicated relationship with food. 
Some of it has to do with bad food memories, intolerances, nausea from pain or anxiety. 
I have noticed last year and this year in particular, my nausea has gotten worse so my anxiety towards eating properly or at all has too. 
I never thought I had an eating disorder as such, because I'm fat. But there is definitely an issue here. 
I find that the easiest thing for me to eat without anxiety is tomato on toast, plain chips or fruit. That's not ideal obviously.. I'm working with my Natropath on an eating plan to heal my gut due to all the damage medications has done as well as my intolerances which has caused leaky gut syndrome. I also have very low iron. 
This means I'm having to challenge myself and my eating anxieties. 
I made a meal today which causes me bad food memories but my husband loves spaghetti and its the easiest thing to include some iron rich foods. I still haven't been able to eat it. Every time I think about it, I feel queasy. 
What usually happens is I will snack on foods like biscuits (cookies) or fruit until I'm really, really hungry enough and I will binge. 
I really need to go back to my psychologist, but I have been trying to tell myself that food is medicine and it won't hurt me. Sometimes it takes some retraining of the brain to push through these negative thoughts and behaviours. 
#chronicpain #fibromyalgia #chronicillness #adenomyosis #eatingdisorder #disability #disabledbutnotenough
10 0 23 February, 2020

It’s been nine weeks. Only nine weeks. But nine long weeks. I feel like I should be so much further than I am but here we are. Three dark dark scars denting my stomach, unable to do an exercises without pain of pulling scars. Here’s to continued healing and trying to get further and further. ......................................................
#endometriosis #endowarrior #endosupport #endometriosissurgery #endometriosisawareness #adenomyosis #adeno #adenomyosisawareness #chronicillness #chronicpain #invisibleillness #invisibleillnessawareness #butyoudontlooksick #realfaceofendo #chronicillnesswarrior #endoqueen

It’s been nine weeks. Only nine weeks. But nine long weeks. I feel like I should be so much further than I am but here we are. Three dark dark scars denting my stomach, unable to do an exercises without pain of pulling scars. Here’s to continued healing and trying to get further and further. ......................................................
#endometriosis #endowarrior #endosupport #endometriosissurgery #endometriosisawareness #adenomyosis #adeno #adenomyosisawareness #chronicillness #chronicpain #invisibleillness #invisibleillnessawareness #butyoudontlooksick #realfaceofendo #chronicillnesswarrior #endoqueen
28 5 23 February, 2020

Annual visits are just not often enough, and I hate that we live so far apart.

Thank goodness for technology; iPhones, voice notes and instagram; which is how this friendship even began 🥰

It really does just make these visits mean that much more though.

#epcot #longdistancebesties #ishouldntneedasweater #butido

Annual visits are just not often enough, and I hate that we live so far apart.

Thank goodness for technology; iPhones, voice notes and instagram; which is how this friendship even began 🥰

It really does just make these visits mean that much more though.

#epcot #longdistancebesties #ishouldntneedasweater #butido
96 3 23 February, 2020

#SelfCareSunday
Taking care of your #MentalHealth is so important and worth making the time to address.
If your struggling, please reach out. You are definitely not alone and there are free resources you can use like @lifeline_wa
💛
Reposted from @what.is.mental.illness Mental health can be a very challenging and sensitive conversation topic, especially when it comes to talking about your own mental health. This puts us in a very vulnerable position, where we have to talk about something extremely sensitive and personal. Being put in that vulnerable position can also bring up a lot of unpleasant emotions that we’ll be forced to feel and process. Needless to say, it takes a lot of courage to talk about such an intimate experience. We also run the risk of oversharing and making others feel uncomfortable around us. Even though 1 in 5 people deal with mental illness; there is still a lot of stigmas attached to mental health. We may worry about being misunderstood, judged, or even ostracized. So it’s only natural to not want to share or talk about our experiences when we don’t feel safe to do so. However, not talking about our mental illnesses can also make us feel very lonely and isolated.
Talking about my anxiety disorders took the weight off my shoulders. You don't necessarily need to talk a family member or a friend if it's too hard for you. But you can consult a therapist (which is really helpful) There's a lot of mental health groups on the internet that can be really helpul when it's time to share your experience. You can find a lot of people in the same situation as you and people who can relate to your experience.

If you're seeing this, follow
@what.is.mental.illness for more! 🤍
_________________ - #regrann

#SelfCareSunday 
Taking care of your #MentalHealth is so important and worth making the time to address.
If your struggling, please reach out. You are definitely not alone and there are free resources you can use like @lifeline_wa
💛
Reposted from @what.is.mental.illness Mental health can be a very challenging and sensitive conversation topic, especially when it comes to talking about your own mental health. This puts us in a very vulnerable position, where we have to talk about something extremely sensitive and personal. Being put in that vulnerable position can also bring up a lot of unpleasant emotions that we’ll be forced to feel and process. Needless to say, it takes a lot of courage to talk about such an intimate experience. We also run the risk of oversharing and making others feel uncomfortable around us. Even though 1 in 5 people deal with mental illness; there is still a lot of stigmas attached to mental health. We may worry about being misunderstood, judged, or even ostracized. So it’s only natural to not want to share or talk about our experiences when we don’t feel safe to do so. However, not talking about our mental illnesses can also make us feel very lonely and isolated. 
Talking about my anxiety disorders took the weight off my shoulders. You don't necessarily need to talk a family member or a friend if it's too hard for you. But you can consult a therapist (which is really helpful) There's a lot of mental health groups on the internet that can be really helpul when it's time to share your experience. You can find a lot of people in the same situation as you and people who can relate to your experience.

If you're seeing this, follow
@what.is.mental.illness for more! 🤍
_________________ - #regrann
67 4 23 February, 2020

In the last week, I’ve recorded two guest episodes with @fightfierceendo and @chronicallystill (thank you both so much! 💛💜) and will be recording 3 informational episodes and a guest episode tomorrow for the Chronic Illness Support Podcast! Stay tuned for updates and episodes!

If you haven’t listened to episodes yet, here’s the link to catch up: https://anchor.fm/samantha-bowick

#chronicillnesssupport #podcast #anchor #spotify #pocketcasts #applepodcasts #googlepodcasts #overcast #radiopublic #breaker #chronicillness #endometriosis #alpha1antitrypsindeficiency #copd #emphysema #asthma #endometriosis #pcos #interstitialcystitis #adenomyosis #crohns #neuropathy #kidneystones #thromboticthrombocytopenicpurpura #fibromyalgia #anxiety #diabetes #depression #lymedisease #lupus #heartdisease

In the last week, I’ve recorded two guest episodes with @fightfierceendo and @chronicallystill (thank you both so much! 💛💜) and will be recording 3 informational episodes and a guest episode tomorrow for the Chronic Illness Support Podcast! Stay tuned for updates and episodes!

If you haven’t listened to episodes yet, here’s the link to catch up: https://anchor.fm/samantha-bowick

#chronicillnesssupport #podcast #anchor #spotify #pocketcasts #applepodcasts #googlepodcasts #overcast #radiopublic #breaker #chronicillness #endometriosis #alpha1antitrypsindeficiency #copd #emphysema #asthma #endometriosis #pcos #interstitialcystitis #adenomyosis #crohns #neuropathy #kidneystones #thromboticthrombocytopenicpurpura #fibromyalgia #anxiety #diabetes #depression #lymedisease #lupus #heartdisease
11 0 23 February, 2020

sounds about right

sounds about right
197 23 23 February, 2020

Half the population will menstruate during their lifetime and 90% of women experience symptoms of PMS, a syndrome which features a wide range of signs and symptoms and yet there’s an enduring lack of understanding about what it actually is.

PMS or Premenstrual Syndrome ranges from a variety of physical, emotional and behavioural changes and symptoms which can include breast pain and tenderness, abdominal bloating, weight gain, tiredness, headaches, cramps in the abdomen, muscle and joint ache, headaches, food cravings, constipation/diarrhea, lowered sex drive, acne, nausea, dizziness, restlessness, insomnia, fatigue, depression, moodiness, irritability, anxiety, unexplained sadness, confusion and forgetfulness. All these symptoms begin approximately 7 to 10 days before menses appear and recede shortly after menstrual flow begins.

When PMS gets to the point where it begins to consistently interfere with daily functioning and personal relationships, a diagnosis of Premenstrual Dysphoric Disorder (PMDD) may be made. PMDD affects less than 5% of women and may be caused by severe reactions to hormone changes, prostaglandins, and low levels of serotonin.
Acupuncture and Chinese medicine balance internal regulatory systems such as the nervous system, the endocrine system, and the neuroendocrine system. It also takes into account lifestyle recommendations such as ways to reduce stress, improve sleep, incorporate exercise, reduce hormone disruptors and effectively treat and manage PMS symptoms from a wholistic perspective.
#pms #painfulperiods #pcos #dysmenorrhea #period #nautralperiodrelief #chineseherbalmedicine #acupuncture #pmsless #pmsproblems #adenomyosis #endometriosis #theendoproject #endoawareness #pelvicpain #endometriosisawareness #endosisters #endostrong #endowarrior #womenempoweringwomen #moveintoendo #endowhat

Half the population will menstruate during their lifetime and 90% of women experience symptoms of PMS, a syndrome which features a wide range of signs and symptoms and yet there’s an enduring lack of understanding about what it actually is.

PMS or Premenstrual Syndrome ranges from a variety of physical, emotional and behavioural changes and symptoms which can include breast pain and tenderness, abdominal bloating, weight gain, tiredness, headaches, cramps in the abdomen, muscle and joint ache, headaches, food cravings, constipation/diarrhea, lowered sex drive, acne, nausea, dizziness, restlessness, insomnia, fatigue, depression, moodiness, irritability, anxiety, unexplained sadness, confusion and forgetfulness.  All these symptoms begin approximately 7 to 10 days before menses appear and recede shortly after menstrual flow begins.

When PMS gets to the point where it begins to consistently interfere with daily functioning and personal relationships, a diagnosis of Premenstrual Dysphoric Disorder (PMDD) may be made.  PMDD affects less than 5% of women and may be caused by severe reactions to hormone changes, prostaglandins, and low levels of serotonin. 
Acupuncture and Chinese medicine balance internal regulatory systems such as the nervous system, the endocrine system, and the neuroendocrine system.  It also takes into account lifestyle recommendations such as ways to reduce stress, improve sleep, incorporate exercise, reduce hormone disruptors and effectively treat and manage PMS symptoms from a wholistic perspective. 
#pms #painfulperiods #pcos #dysmenorrhea #period #nautralperiodrelief #chineseherbalmedicine #acupuncture #pmsless #pmsproblems #adenomyosis #endometriosis #theendoproject #endoawareness #pelvicpain #endometriosisawareness #endosisters #endostrong #endowarrior #womenempoweringwomen #moveintoendo #endowhat
26 0 23 February, 2020

A photo from when I wasn't flaring 😫 or in my dressing gown, well past noon. I love this quote below by, Doe Zantamata. A perfect reminder for days like these 💙 "Some days are better, some days are worse. Look for the blessing instead of the curse. Be positive, stay strong, and get enough rest. You can’t do it all, but you can do your best."
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#chronicpain #chronicillness #chronicdisease #pelvicpain #spoonie #spoonielife #invisibleillness #butyoudontlooksick #adenomyosis #adenomyosiswarrior #adenomyosisawareness #radiatepositivity

A photo from when I wasn't flaring 😫 or in my dressing gown, well past noon. I love this quote below by, Doe Zantamata. A perfect reminder for days like these 💙 "Some days are better, some days are worse. Look for the blessing instead of the curse. Be positive, stay strong, and get enough rest. You can’t do it all, but you can do your best."
*
*
#chronicpain #chronicillness #chronicdisease #pelvicpain #spoonie #spoonielife #invisibleillness #butyoudontlooksick #adenomyosis #adenomyosiswarrior #adenomyosisawareness  #radiatepositivity
30 2 23 February, 2020

It’s Sunday? 🤔
I say it’s Groundhog Day 😫

I have surrendered to the fact this recovery will not be quick. The nurse in the hospital reminded me the other day because I also have Hashimotos disease, my body is running slower than most and will take longer heal. 🤦🏼‍♀️ So, today I’m taking the small wins because for the first time since Wednesday, I can almost stand upright 👊🏼❤️ Last night Jay from @jay_and_ziggys_furry_friends dropped past and left me strawberries 🍓☺️ That guy is too much!
@dazza.on.air continues to fuss over me making sure I’m not lifting a finger! The only thing he’s allowing me to do alone is shower and pee! 😂
I’m honestly the luckiest girl alive.

If anyone is out enjoying this beautiful day, please have a drink for me! ☀️🍹🍷🍺🍾🥂
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#hysterectomy #endometriosis #adenomyosis #hystersisters #fibroids #chronicillness #endometriosisawareness #brca #hystersister #womenshealth #spoonies #menopause #hysterectomyrecovery #chronicpain #endometriosiswarrior #obgyn #spoonie #pcos #endosister #surgery #endometriosisuk #myendostory #cmt #spontaneousurticaria #chronicspontaneousurticaria #urticaria #adenomyosisawareness #hysterectormy #endopain #bhfyp

It’s Sunday? 🤔 
I say it’s Groundhog Day 😫

I have surrendered to the fact this recovery will not be quick. The nurse in the hospital reminded me the other day because I also have Hashimotos disease, my body is running slower than most and will take longer heal. 🤦🏼‍♀️ So, today I’m taking the small wins because for the first time since Wednesday, I can almost stand upright 👊🏼❤️ Last night Jay from @jay_and_ziggys_furry_friends  dropped past and left me strawberries 🍓☺️ That guy is too much! 
@dazza.on.air continues to fuss over me making sure I’m not lifting a finger! The only thing he’s allowing me to do alone is shower and pee! 😂
I’m honestly the luckiest girl alive.

If anyone is out enjoying this beautiful day, please have a drink for me! ☀️🍹🍷🍺🍾🥂
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#hysterectomy #endometriosis #adenomyosis #hystersisters #fibroids #chronicillness #endometriosisawareness #brca #hystersister #womenshealth #spoonies #menopause #hysterectomyrecovery #chronicpain #endometriosiswarrior #obgyn #spoonie #pcos #endosister #surgery #endometriosisuk #myendostory #cmt #spontaneousurticaria #chronicspontaneousurticaria #urticaria #adenomyosisawareness #hysterectormy #endopain #bhfyp
27 0 23 February, 2020

Today Kyle and I went on a hike. It was an act of rebellion against how I’ve been feeling lately and a literal breath of fresh air. I’m so proud of myself. I took some pain medicine before and after, laced up my pink shoe laces on my hiking boots, and found a walking stick. The hike was extremely steep and rocky, Kyle was really patient with me. It took me 48 minutes to hike half a mile. I was really concerned with falling and hurting my post surgery body. We climbed to the top of a ridge where we stood and looked at the valley below. It was gorgeous, we saw all the pine trees and a herd of deer. We stopped and split and orange and even though I felt like my vagina was falling out and had a lot of pelvic pain, I was very happy. More happy than I’ve been in a long time. We ended up going 1.75 miles. By the time we got back to the truck my legs were shaking. It was really hard for me but I got a glimpse at the life I used to have before all of this- Kyle and I love to hike, camp, backpack and fish together. Someday we’ll be able to do all of those things again and I won’t be in so much pain. I’m fighting for it. 💛🎗 #endo #adeno #endometriosis #adenomyosis #chronicillness #1in10 #endowarrior

Today Kyle and I went on a hike. It was an act of rebellion against how I’ve been feeling lately and a literal breath of fresh air. I’m so proud of myself. I took some pain medicine before and after, laced up my pink shoe laces on my hiking boots, and found a walking stick. The hike was extremely steep and rocky, Kyle was really patient with me. It took me 48 minutes to hike half a mile. I was really concerned with falling and hurting my post surgery body. We climbed to the top of a ridge where we stood and looked at the valley below. It was gorgeous, we saw all the pine trees and a herd of deer. We stopped and split and orange and even though I felt like my vagina was falling out and had a lot of pelvic pain, I was very happy. More happy than I’ve been in a long time. We ended up going 1.75 miles. By the time we got back to the truck my legs were shaking. It was really hard for me but I got a glimpse at the life I used to have before all of this- Kyle and I love to hike, camp, backpack and fish together. Someday we’ll be able to do all of those things again and I won’t be in so much pain. I’m fighting for it. 💛🎗 #endo #adeno #endometriosis #adenomyosis #chronicillness #1in10 #endowarrior
257 10 23 February, 2020

Can cannabis help menstrual pain?
ABSO-FUCKING-LUTELY!

Article on @thecannigma : https://cannigma.com/conditions/menstrual-pain/
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#periodpain #dysmenorrhea #adenomyosis #endometriosis #periods #chronicpain

Can cannabis help menstrual pain? 
ABSO-FUCKING-LUTELY!

Article on @thecannigma : https://cannigma.com/conditions/menstrual-pain/
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#periodpain #dysmenorrhea #adenomyosis #endometriosis #periods #chronicpain
13 0 22 February, 2020

Just made a lil amendment on this...
Heavy prolonged periods are not indicative of Adenomyosis.
You can have regular, light periods and still have Adenomyosis.
I had a dr tell me I “couldn’t possibly have Adenomyosis” due to having regular light-normal periods. Trans-vaginal ultrasound showing venetian blinding made him eat his words. Dick. .
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#adenomyosis #endometriosis #womenshealth #reproductivehealth #uterusproblems #uterusaintcuterus #periodproblems #periods #menstruation

Just made a lil amendment on this...
Heavy prolonged periods are not indicative of Adenomyosis. 
You can have regular, light periods and still have Adenomyosis. 
I had a dr tell me I “couldn’t possibly have Adenomyosis” due to having regular light-normal periods. Trans-vaginal ultrasound showing venetian blinding made him eat his words. Dick. .
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#adenomyosis #endometriosis #womenshealth #reproductivehealth #uterusproblems #uterusaintcuterus #periodproblems #periods #menstruation
38 4 22 February, 2020

I’m looking at starting an elimination diet to help in reducing inflammatory symptoms related to adenomyosis and endometriosis. I’m a vegetarian who is already gluten intolerant, so the tricky part is the dairy 😱 This is a gal who loves cheese and yogurt, so I’m really hoping there are some TASTY alternatives that also have a good amount of protein.
Please put your suggestions below ⬇️
#endometriosis #adenomyosis #endo #adeno #endometriosisawareness #adenomyosisawareness #endowarrior #adenowarrior #endosisters #adenosisters #chronicillness #chronicpain #invisibleillness #spoonie #1in10 #endosisters #adenosisters #endowarrior #adenowarrior #womenshealth #holistichealth #naturalhealing #vegan #veganfood #vegetarian #eleminationdiet #food #healthy #vegansofinstagram #health #natural #dairyfree #plantbased #veganlife

I’m looking at starting an elimination diet to help in reducing inflammatory symptoms related to adenomyosis and endometriosis.  I’m a vegetarian who is already gluten intolerant, so the tricky part is the dairy 😱 This is a gal who loves cheese and yogurt, so I’m really hoping there are some TASTY alternatives that also have a good amount of protein. 
Please put your suggestions below ⬇️
#endometriosis #adenomyosis #endo #adeno #endometriosisawareness #adenomyosisawareness #endowarrior #adenowarrior #endosisters #adenosisters #chronicillness #chronicpain #invisibleillness #spoonie #1in10 #endosisters #adenosisters #endowarrior #adenowarrior #womenshealth #holistichealth #naturalhealing #vegan #veganfood #vegetarian #eleminationdiet #food #healthy #vegansofinstagram #health #natural #dairyfree #plantbased #veganlife
16 5 22 February, 2020

Did you hear!? Our Feb intake for our @endosisterofficial program opens tomorrow, for our Little EndoSisters!😌 Our little EndoSisters are amazing people who might be new to their diagnosis or might need some extra support from a Big EndoSister. You can read more about our EndoSister Program and apply (tomorrow) right here 👉🏼 https://www.qendo.org.au/endosister
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Illustration by @nicolajanecreative
#sunday #sundayselfcare #qendo #endometriosis #adenomyosis #pcos #women #supportingwomen #womenshealth #endosister #endosisterprogram

Did you hear!? Our Feb intake for our @endosisterofficial program opens tomorrow, for our Little EndoSisters!😌 Our little EndoSisters are amazing people who might be new to their diagnosis or might need some extra support from a Big EndoSister. You can read more about our EndoSister Program and apply (tomorrow) right here 👉🏼 https://www.qendo.org.au/endosister
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Illustration by @nicolajanecreative 
#sunday #sundayselfcare #qendo #endometriosis #adenomyosis #pcos #women #supportingwomen #womenshealth #endosister #endosisterprogram
44 2 22 February, 2020

Did you hear!? Our Feb intake for our @endosisterofficial program opens tomorrow, for our Little EndoSisters!😌 Our little EndoSisters are amazing people who might be new to their diagnosis or might need some extra support from a Big EndoSister. You can read more about our EndoSister Program and apply (tomorrow) right here 👉🏼 https://www.qendo.org.au/endosister
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Illustration by @nicolajanecreative
#sunday #sundayselfcare #qendo #endometriosis #adenomyosis #pcos #women #supportingwomen #womenshealth #endosister #endosisterprogram

Did you hear!? Our Feb intake for our @endosisterofficial program opens tomorrow, for our Little EndoSisters!😌 Our little EndoSisters are amazing people who might be new to their diagnosis or might need some extra support from a Big EndoSister. You can read more about our EndoSister Program and apply (tomorrow) right here 👉🏼 https://www.qendo.org.au/endosister
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Illustration by @nicolajanecreative 
#sunday #sundayselfcare #qendo #endometriosis #adenomyosis #pcos #women #supportingwomen #womenshealth #endosister #endosisterprogram
88 3 22 February, 2020

🤣 my life 🤣

🤣 my life 🤣
100 4 22 February, 2020

Out of all the changes I’ve had to make in trying to figure out the pain in my lower torso over the last year, the ones I’m struggling the most with are giving up caffeine and my exercise regime.
In order to try and source my pain, as well as give my body a chance to heal and recover, I’ve ordered to eat a Vegan-ish diet, cut out caffeine, gluten, and a whole lot of other foods that I won’t go into. Reduce my stress levels, all while exercising less vigorously. We’re talking Restorative Yoga and walking only.
Cutting out meat was surprisingly easier than I thought. I’ve really grown to love Tofu (especially that crispy peanut tofu recipe I emailed out last week), fruits of all kinds and roasted veggies are my jam. But losing the weights, HIIT and my BFF Amoila, that’s been really tough. Exercise has always been a source of stress relief for me and not being able to really sweat it out, well, it’s taking a toll on my psyche. Thank goodness for meditation and Reiki.
I’m also not what I would consider addicted to caffeine, but I really love it. A lot. I love a cup of coffee in the morning, or 2… There’s caffeine in my favorite Superfood / Protein Shake… There’s caffeine in chocolate… Those are 3 things I used to eat every day.
So yes, I’ve been struggling with these Doctor’s Orders, but I’ve been compliant. And begging for caffeine and exercise at every appointment. BUT I did find a silver lining… the kids version of my superfood smoothie doesn’t have caffeine and comes in a Strawberry Banana flavor that is pretty damn good!! I just got it in this week and have been playing with some recipe variations. Extra frozen strawberries, some gluten free oats and a serving of PB2 is my favorite so far. I just picked up some Carob chips and am looking forward to trying those soon too.

I’m still on the hunt for Vegan & Fish recipes, so leave them in a comment or DM me!

Out of all the changes I’ve had to make in trying to figure out the pain in my lower torso over the last year, the ones I’m struggling the most with are giving up caffeine and my exercise regime. 
In order to try and source my pain, as well as give my body a chance to heal and recover, I’ve ordered to eat a Vegan-ish diet, cut out caffeine, gluten, and a whole lot of other foods that I won’t go into.  Reduce my stress levels, all while exercising less vigorously.  We’re talking Restorative Yoga and walking only. 
Cutting out meat was surprisingly easier than I thought.  I’ve really grown to love Tofu (especially that crispy peanut tofu recipe I emailed out last week), fruits of all kinds and roasted veggies are my jam.  But losing the weights, HIIT and my BFF Amoila, that’s been really tough.  Exercise has always been a source of stress relief for me and not being able to really sweat it out, well, it’s taking a toll on my psyche.  Thank goodness for meditation and Reiki. 
I’m also not what I would consider addicted to caffeine, but I really love it.  A lot.  I love a cup of coffee in the morning, or 2…  There’s caffeine in my favorite Superfood / Protein Shake…  There’s caffeine in chocolate…  Those are 3 things I used to eat every day. 
So yes, I’ve been struggling with these Doctor’s Orders, but I’ve been compliant.  And begging for caffeine and exercise at every appointment.  BUT I did find a silver lining…  the kids version of my superfood smoothie doesn’t have caffeine and comes in a Strawberry Banana flavor that is pretty damn good!! I just got it in this week and have been playing with some recipe variations.  Extra frozen strawberries, some gluten free oats and a serving of PB2 is my favorite so far.  I just picked up some Carob chips and am looking forward to trying those soon too.

I’m still on the hunt for Vegan & Fish recipes, so leave them in a comment or DM me!
18 2 22 February, 2020

Reflecting on my 9-month post-op date today (see post from earlier today for the update!), I've been thinking a lot about the idea of disenfranchised grief and how prevalent it must be among people with endo and related conditions, other people with chronic illnesses/chronic pain, people experiencing infertility, etc. How so many of us have been told-- as I have been-- to "just" be thankful, that our loss isn't a big deal, that things could be worse.
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If you're not familiar with the concept of disenfranchised grief, it's basically grief that society doesn't really recognize. For example, the death of someone involved in an extramarital affair or when someone's cause of death is stigmatized, like suicide, overdose, or driving while impaired. This can be related to miscarriage, stillbirth, or abortion. People may experience disenfranchised grief following the death of a celebrity, someone they only knew online, or someone they don't remember (i.e., a parent who died when they were young; a sibling who died before they were born). It may also be a loss of a relationship that is not traditionally recognized during a death, such as the death of a coworker, patient, client, doctor, therapist, etc. or even the death of a pet.
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However, the losses that I think are even more far-removed from many people's frame of understanding are those that don't involve death. Infertility. Loss of health. The opportunities we lose because of our health. Friendships and relationships that end. Loss of organs and function. Loss of community and family. Loss of sense of self. Treatment, surgery, etc that doesn't work or makes us feel worse-- that loss of hope. We certainly can and do experience the "death losses" as well, but for many of us these "living losses" can be part of what makes surviving and healing and thriving with chronic illness so damn challenging. If this is a new term or concept for you, I hope it brought a little bit of validation to your experience.
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If you're experiencing disenfranchised grief, please feel free to share the name or description of who or what you're grieving 💛
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#disenfranchisedgrief #endocommunity #endowarrior #endostrong #infertility

Reflecting on my 9-month post-op date today (see post from earlier today for the update!), I've been thinking a lot about the idea of disenfranchised grief and how prevalent it must be among people with endo and related conditions, other people with chronic illnesses/chronic pain, people experiencing infertility, etc. How so many of us have been told-- as I have been-- to "just" be thankful, that our loss isn't a big deal, that things could be worse.
.
If you're not familiar with the concept of disenfranchised grief, it's basically grief that society doesn't really recognize. For example, the death of someone involved in an extramarital affair or when someone's cause of death is stigmatized, like suicide,  overdose, or driving while impaired. This can be related to miscarriage, stillbirth, or abortion. People may experience disenfranchised grief following the death of a celebrity, someone they only knew online, or someone they don't remember (i.e., a parent who died when they were young; a sibling who died before they were born). It may also be a loss of a relationship that is not traditionally recognized during a death, such as the death of a coworker, patient, client, doctor, therapist, etc. or even the death of a pet.
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However, the losses that I think are even more far-removed from many people's frame of understanding are those that don't involve death. Infertility. Loss of health. The opportunities we lose because of our health. Friendships and relationships that end. Loss of organs and function. Loss of community and family. Loss of sense of self. Treatment, surgery, etc that doesn't work or makes us feel worse-- that loss of hope. We certainly can and do experience the "death losses" as well, but for many of us these "living losses" can be part of what makes surviving and healing and thriving with chronic illness so damn challenging. If this is a new term or concept for you, I hope it brought a little bit of validation to your experience.
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If you're experiencing disenfranchised grief, please feel free to share the name or description of who or what you're grieving 💛
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#disenfranchisedgrief #endocommunity #endowarrior #endostrong #infertility
68 19 22 February, 2020

We are joining together on a subject that holds enormous importance for many women. Endometriosis - a disease that can ambush a woman’s health for many years before being correctly diagnosed. Endometriosis affects an estimated 200 million worldwide and now an estimated 1 in 8 females. It attacks as early as puberty, and left untreated, it can lead to extremely painful and devastating complications. 🎗💛 This year’s panel discussion is primarily focused on “Living with endometriosis”. The panel forum will help arm you with the tools you need to navigate your way through puberty, fertility and pregnancy with endometriosis.
Other topics will include: 🎗- Living with Adenomyosis 🎗- How Chronic pain affects mental health: living with endo 🎗- Hurdles that loved ones face supporting their endo warrior. 🎗- Nutrition and exercise 🎗- Preserving your fertility
🎗 - The different forms of contraception used in Endometriosis management
🎗 - The Life cycle of Endo from Adolescence to Menopause 🎗- Taboos and Stigmas 🎗- IVF & Endo 🎗 - Wholistic Care for Endo
We are honoured to be raising awareness for @endometriosisaustralia with all ticket sales donated to Endo Australia.

We believe that living with endometriosis requires a collaborative and interdisciplinary effort that can deliver the best outcomes for patient diagnosis, care and management. Please join us in this vital conversation alongside @drjosephsgroi and Ambassador for Endometriosis Australia @sarahmareelife
Each year we are committed to empowering our community of Endo-warriors with the latest research and information. March into Yellow for endometriosis awareness month will help us raise awareness of endometriosis here in Australia.
Please join us in this vital conversation on March 18th @willowurbanretreat 6.30pm-8pm.
Tickets: $20

We hope to arm you with some of the best tools so you can “live your best life with Endo” no matter which stage of life you are in!. 🎗💛🎗💛 Join in the conversation. Please tag a friend below who may be in need of hearing this vital information.

We are joining together on a subject that holds enormous importance for many women. Endometriosis - a disease that can ambush a woman’s health for many years before being correctly diagnosed. Endometriosis affects an estimated 200 million worldwide and now an estimated 1 in 8 females. It attacks as early as puberty, and left untreated, it can lead to extremely painful and devastating complications. 🎗💛 This year’s panel discussion is primarily focused on “Living with endometriosis”. The panel forum will help arm you with the tools you need to navigate your way through puberty, fertility and pregnancy with endometriosis. 
Other topics will include: 🎗- Living with Adenomyosis 🎗- How Chronic pain affects mental health: living with endo 🎗- Hurdles that loved ones face supporting their endo warrior. 🎗- Nutrition and exercise 🎗- Preserving your fertility
🎗 -  The different forms of contraception used in Endometriosis management
🎗 -  The Life cycle of Endo from Adolescence to Menopause 🎗- Taboos and Stigmas 🎗- IVF & Endo 🎗 - Wholistic Care for Endo 
We are honoured to be raising awareness for @endometriosisaustralia with all ticket sales donated to Endo Australia.

We believe that living with endometriosis requires a collaborative and interdisciplinary effort that can deliver the best outcomes for patient diagnosis, care and management. Please join us in this vital conversation alongside @drjosephsgroi and Ambassador for Endometriosis Australia @sarahmareelife 
Each year we are committed to empowering our community of Endo-warriors with the latest research and information. March into Yellow for endometriosis awareness month will help us raise awareness of endometriosis here in Australia. 
Please join us in this vital conversation on March 18th @willowurbanretreat 6.30pm-8pm. 
Tickets: $20

We hope to arm you with some of the best tools so you can “live your best life with Endo” no matter which stage of life you are in!. 🎗💛🎗💛 Join in the conversation. Please tag a friend below who may be in need of hearing this vital information.
55 2 22 February, 2020

Hi everyone,
So I thought I would introduce myself to all the new followers !
.
My name is priscilla I am 26 going on 27 in March 😂
.
I was diagnosed with #alopeciaareata at 10 1/2. At the time alopecia was not yet well known so my symptoms excited and I ended up with #alopeciatotalis and then #alopeciauniversalis.
.
By my 20s I managed to get all my hair back some lashes and eyebrow hairs (very exciting times).
.
My hair stayed with me till I was 24 when my period pain started to get worse. One night my brother found me on the floor and I had no feeling in my legs. It was so scary as my parents were not home and I had no idea why my pain caused me to fall.
.
I was never taken seriously in the past for my pain so I went back to the gp and found one dr that understood and she sent me to a gyno straight away. I went for my first op, they found adhisions and scare tissue but did not diagnose me properly with endo. Due to the stress of the op on my body it triggered my alopecia again my
.
By 25 I had most of my hair fall out. So I went and saw another dermatologist and she helped me get back on track. During that time I had more flares in my cycle. My back caved in during one of them and my chiropractor encouraged me to get a second opinion.
.
Before I just turned 25 I got another opinion so back in they found a lot more adhesions some in
The same area and scare tissue in other areas. They diagnosed me with stage 2 #endo and #adenomyosis.
.
I have been on a range of medications for my hair such as #thyroid to help with my #hashimotosdisease / #lowthyroid and a range of steroids to get my hair back on track plus help my skin to.
.
Though these times I made a lot of art work that helped me manage. This year I took a deep breath and decide to be brave and sell my work 💕
.
I love Angels and animals and believe that everything has a meaning/ lesson to teach us. So most the works I do have a message or meaning behind them. This week I have decided I am a #mixmediaartist 💕
These works you see are up for sale as prints in a4/A3. If you would like to be on the pre-Order list let me know below 💕 @bypriscillafeleppa .
#artteachersofinstagram #artteacher #devine #angels

Hi everyone,
So I thought I would introduce myself to all the new followers !
.
My name is priscilla I am 26 going on 27 in March 😂
.
I was diagnosed with #alopeciaareata at 10 1/2. At the time alopecia was not yet well known so my symptoms excited and I ended up with #alopeciatotalis and then #alopeciauniversalis.
.
By my 20s I managed to get all my hair back some lashes and eyebrow hairs (very exciting times).
.
My hair stayed with me till I was 24 when my  period pain started to get worse. One night my brother found me on the floor and I had no feeling in my legs. It was so scary as my parents were not home and I had no idea why my pain caused me to fall.
.
I was never taken seriously in the past for my pain so I went back to the gp and found one dr that understood and she sent me to a gyno straight away. I went for my first op, they found adhisions and scare tissue but did not diagnose me properly with endo. Due to the stress of the op on my body it triggered my alopecia again my
.
By 25 I had most of my hair fall out. So I went and saw another dermatologist and she helped me get back on track. During that time I had more flares in my cycle. My back caved in during one of them and my chiropractor encouraged me to get a second opinion.
.
Before I just turned 25 I got another opinion so back in they found a lot more adhesions some in 
The same area and scare tissue in other areas. They diagnosed me with stage 2 #endo and #adenomyosis.
.
I have been on a range of medications for my hair such as #thyroid to help with my #hashimotosdisease / #lowthyroid and a range of steroids to get my hair back on track plus help my skin to.
.
Though these times I made a lot of art work that helped me manage. This year I took a deep breath and decide to be brave and sell my work 💕
.
I love Angels and animals and believe that everything has a meaning/ lesson to teach us. So most the works I do have a message or meaning behind them. This week I have decided I am a #mixmediaartist 💕
These works you see are up for sale as prints in a4/A3. If you would like to be on the pre-Order list let me know below 💕 @bypriscillafeleppa .
#artteachersofinstagram #artteacher #devine #angels
15 2 22 February, 2020

The more you know. I never heard of Adenomyosis nor endometriosis in my lifetime. Not until a friend here on Instagram messaged me and thought what I was suffering from was endometriosis. I thank @mcrawn7287 for that. You have helped me to find help and relief.
I just started the process with the Endometriosis and Pelvic Pain Surgery Center here in Washington state.
As time goes on my symptoms and pain has gotten worse. I am on the waiting list to meet the specialist surgeon. She is one of the top endometriosis specialists in the nation and probably the world. I can't wait to meet her.
Today my pain is pretty bad. I think my period is coming soon my cramps have started. Still just light bleeding and uterus has just stayed swollen. Once I start, I have to call the hospital my orders were sent to and schedule my internal and external ultrasounds and bloodwork. I am not looking forward to that because I know it's going to be really painful. But I guess it's all necessary. Off to survive another day.🎗💛
.
.
.
#chronicdiseases #chronicillness #chronicpainawareness #chronicpain #painwarrior #chronicallyill #chronicchicks #femalepain #femaleproblems #femaleissues #endowarrior #endometriosiswarrior #endometriosisfighter #endosymptoms #adenomyosiswarrior #adenomyosisawareness #Adenomyosis #spooniewarrior #spoonielife #spoonieblogger #spoonie

The more you know. I never heard of Adenomyosis nor endometriosis in my lifetime. Not until a friend here on Instagram messaged me and thought what I was suffering from was endometriosis. I thank @mcrawn7287 for that. You have helped me to find help and relief.
I just started the process with the Endometriosis and Pelvic Pain Surgery Center here in Washington state.
As time goes on my symptoms and pain has gotten worse. I am on the waiting list to meet the specialist surgeon. She is one of the top endometriosis specialists in the nation and probably the world. I can't wait to meet her.
Today my pain is pretty bad. I think my period is coming soon my cramps have started. Still just light bleeding and uterus has just stayed swollen. Once I start, I have to call the hospital my orders were sent to and schedule my internal and external ultrasounds and bloodwork. I am not looking forward to that because I know it's going to be really painful. But I guess it's all necessary. Off to survive another day.🎗💛
.
.
.
#chronicdiseases #chronicillness #chronicpainawareness #chronicpain #painwarrior #chronicallyill #chronicchicks #femalepain #femaleproblems #femaleissues #endowarrior #endometriosiswarrior #endometriosisfighter #endosymptoms #adenomyosiswarrior #adenomyosisawareness #Adenomyosis  #spooniewarrior #spoonielife #spoonieblogger #spoonie
35 0 22 February, 2020

Yes I realize it’s not New Year’s Eve lol. Tomorrow is my 1 year wedding anniversary and for me is a time to try to stop and recognize that even though there are things we still are wanting and still haven’t gotten to, that we are closer than we were a year ago. That we are fighting and clawing to get to what we want. My wife is still away on military orders so I’ll be spending the day pampering and taking myself on a date to pass the time until she gets home and we can celebrate 🎉 ......................................................
#endometriosis #endowarrior #endosupport #endometriosissurgery #endometriosisawareness #adenomyosis #adeno #adenomyosisawareness #chronicillness #chronicpain #invisibleillness #invisibleillnessawareness #butyoudontlooksick #realfaceofendo #chronicillnesswarrior #endoqueen #militarylife #militaryspouse #eds #hypermobility #militaryhomecoming

Yes I realize it’s not New Year’s Eve lol. Tomorrow is my 1 year wedding anniversary and for me is a time to try to stop and recognize that even though there are things we still are wanting and still haven’t gotten to, that we are closer than we were a year ago. That we are fighting and clawing to get to what we want. My wife is still away on military orders so I’ll be spending the day pampering and taking myself on a date to pass the time until she gets home and we can celebrate 🎉 ......................................................
#endometriosis #endowarrior #endosupport #endometriosissurgery #endometriosisawareness #adenomyosis #adeno #adenomyosisawareness #chronicillness #chronicpain #invisibleillness #invisibleillnessawareness #butyoudontlooksick #realfaceofendo #chronicillnesswarrior #endoqueen #militarylife #militaryspouse #eds #hypermobility #militaryhomecoming
22 2 22 February, 2020

I was talking to a smart young woman on Thursday night (hi @bollynewton 🤪) about success and how success looks different for everyone.
I think so often people in this community get caught up in the success of one test that we forget about other achievements and don’t celebrate them anywhere near enough.

For example, this week - I grew my business with two new contracts and hired a graphic design subcontractor and finalised my first NDA with a lawyer. Those are all big milestones and means my business will be twice as successful this year as last year.

There are women here who have almost finished their PHDs and will soon call themselves Doctor (hi @heidi_loves_tea), who lost 3kgs (@over_the_rainbow1978) and went for a long walk - even though they didn’t feel like it, acing a job interview (@thebigfword_fertility), getting through an event that gives them bad anxiety (@endowarriorttc) and so much more.
Let’s take five minutes and boost ourselves up - give somebody a shout out and tell them how proud you are of what they are doing or talk about something you are proud to have achieved this week.

Let’s celebrate our success!

I was talking to a smart young woman on Thursday night (hi @bollynewton 🤪) about success and how success looks different for everyone. 
I think so often people in this community get caught up in the success of one test that we forget about other achievements and don’t celebrate them anywhere near enough.

For example, this week - I grew my business with two new contracts and hired a graphic design subcontractor and finalised my first NDA with a lawyer. Those are all big milestones and means my business will be twice as successful this year as last year.

There are women here who have almost finished their PHDs and will soon call themselves Doctor (hi @heidi_loves_tea), who lost 3kgs (@over_the_rainbow1978) and went for a long walk - even though they didn’t feel like it, acing a job interview (@thebigfword_fertility), getting through an event that gives them bad anxiety (@endowarriorttc) and so much more. 
Let’s take five minutes and boost ourselves up - give somebody a shout out and tell them how proud you are of what they are doing or talk about something you are proud to have achieved this week.

Let’s celebrate our success!
62 12 22 February, 2020

Yin yoga + sound healing tailored for women with chronic illness, with yours truly and this beautiful human @vibrosound_healing 🌌 2.45pm 1st March at @yoga.mukta 🌌 join us to bliss out and raise money for @qendoau .
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#soundhealing #yinyoga #relaxation #endometriosis #adenomyosis #pcos #endosisters #brisbaneyoga #blissedout #brisbanenutritionist #womenshealth
#holistichealth #soundbath #thetahealing #restanddigest #chronicillness #endometriosis #mereditheastpowell #yogini #yogalove

Yin yoga + sound healing tailored for women with chronic illness, with yours truly and this beautiful human @vibrosound_healing 🌌 2.45pm 1st March at @yoga.mukta 🌌 join us to bliss out and raise money for @qendoau .
.
.
#soundhealing #yinyoga #relaxation #endometriosis #adenomyosis #pcos #endosisters #brisbaneyoga #blissedout #brisbanenutritionist #womenshealth 
#holistichealth #soundbath #thetahealing #restanddigest #chronicillness #endometriosis #mereditheastpowell #yogini #yogalove
96 18 22 February, 2020

Dont look ill right!?! Who knew🤷🏻‍♀️

Dont look ill right!?! Who knew🤷🏻‍♀️
25 3 22 February, 2020

👉Cambios de peso y tratamientos médicos
Y esta frase la escuche hace un par de días cuando estaba por sentarme en una silla en al que siempre me he sentado.

He notado que desde que en enero que el médico me recetó pastillas para mi primera crisis de endometriosis-nervio ciático-pudendo subi de peso ¿cuánto? No lo sé y en verdad lo noto por la ropa, pero el tema de este post no es ese...sino hacer una concienciación de que no está bien comentar sobre el peso de alguien o su cuerpo, porque no sabes por lo que pasa esa persona y si necesita ese tratamiento para poder bajar su dolor y uno de sus efectos secundarios es ese. ¿Qué hice? Aparte de poner mi cara 🤬😡, poner límites asertivos sobre porque no es apropiado que alguien haga eso y explicar los motivos.

Y si esta persona sigue pues apartarla de mi lado. No necesito esos comentarios en mi vida.
Para quienes pasan por esto mucho ánimo, recuerden que estamos juntas en la lucha y que hacemos lo mejor que podemos. 🐘🙏💜💛🌻💪 👉 Weight changes and medical treatments

And I heard this phrase a couple of days ago when I was about to sit in a chair where I've always sat.

I have noticed that since January the doctor prescribed me pills for my first endometriosis - sciatic nerve crisis- I gain weight, how much? I do not know and I really notice it for the clothes, but the subject of this post is not that ... but to raise awareness that it is not right to comment on the weight of someone or their body, because you do not know what happens to that person and if he or she needs that treatment to be able to lower his or her pain and one of the side effects is that.

What did I do? Apart from putting my face 🤬😡, putting assertive limits on why it is not appropriate for someone to do that and explain the reasons.

And if this person continues I would not continue with the friendship with that person. I don't need those comments in my life.

For those who go through this much encouragement, remember that we are together in the fight and that we do the best we can. 🐘🙏💜💛🌻💪

👉Cambios de peso y tratamientos médicos 
Y esta frase la escuche hace un par de días cuando estaba por sentarme en una silla en al que siempre me he sentado.

He notado que desde que en enero que el médico me recetó pastillas para mi primera crisis de endometriosis-nervio ciático-pudendo subi de peso ¿cuánto? No lo sé y en verdad lo noto por la ropa, pero el tema de este post no es ese...sino hacer una concienciación de que no está bien comentar sobre el peso de alguien o su cuerpo, porque no sabes por lo que pasa esa persona y si necesita ese tratamiento para poder bajar su dolor y uno de sus efectos secundarios es ese. ¿Qué hice? Aparte de poner mi cara 🤬😡, poner límites asertivos sobre porque no es apropiado que alguien haga eso y explicar los motivos.

Y si esta persona sigue pues apartarla de mi lado. No necesito esos comentarios en mi vida. 
Para quienes pasan por esto mucho ánimo, recuerden que estamos juntas en la lucha y que hacemos lo mejor que podemos. 🐘🙏💜💛🌻💪 👉 Weight changes and medical treatments

And I heard this phrase a couple of days ago when I was about to sit in a chair where I've always sat.

I have noticed that since  January the doctor prescribed me pills for my first endometriosis - sciatic nerve crisis- I  gain weight, how much? I do not know and I really notice it for the clothes, but the subject of this post is not that ... but to raise awareness that it is not right to comment on the weight of someone or their body, because you do not know what happens to that person and if he or she needs that treatment to be able to lower his or her pain and one of the side effects is that.

What did I do? Apart from putting my face 🤬😡, putting assertive limits on why it is not appropriate for someone to do that and explain the reasons.

And if this person continues I would not continue with the friendship with that person. I don't need those comments in my life.

For those who go through this much encouragement, remember that we are together in the fight and that we do the best we can. 🐘🙏💜💛🌻💪
21 3 22 February, 2020

Werbung | unbezahlt •
Heut Abend gab es das Tassenbrot mit Rosmarin & Knoblauch von @lizza .
Einfache und schnelle Zubereitung. Geschmacklich super lecker und liegt nach dem Essen nicht schwer im Magen!

#lizza #lowcarb #rosmarin #knoblauch #brot #glutenfrei #tassenbrot #abendbrot #abendbrotzeit #essen #ernährungsumstellung #lebenmitendometriose #endo #endometriose #adenomyosis #starksein #chronischkrank #tellyourendostory #endometriosekämpferinnen #gemeinsamstark #schmerzen #1in10

Werbung | unbezahlt •
Heut Abend gab es das Tassenbrot mit Rosmarin & Knoblauch von @lizza .
Einfache und schnelle Zubereitung. Geschmacklich super lecker und liegt nach dem Essen nicht schwer im Magen!
•
#lizza #lowcarb #rosmarin #knoblauch #brot #glutenfrei #tassenbrot #abendbrot #abendbrotzeit #essen #ernährungsumstellung #lebenmitendometriose #endo #endometriose #adenomyosis #starksein #chronischkrank #tellyourendostory #endometriosekämpferinnen #gemeinsamstark #schmerzen #1in10
17 2 22 February, 2020

How good are surgical undies! I took this photo to send to my mum right before I went into my last surgery. I’m not sure who was more nervous & the way we both usually deal with things is laughing so we don’t cry! Her reply was; where can I get some of those 😝🙊👙 #laughteristhebestmedicine #laughsoyoudontcry #endometriosis #endometriosisawareness #endowarrior #endometriosissurgery #adenomyosis #adenomyosisawareness #adenomyosiswarrior

How good are surgical undies! I took this photo to send to my mum right before I went into my last surgery. I’m not sure who was more nervous & the way we both usually deal with things is laughing so we don’t cry! Her reply was; where can I get some of those 😝🙊👙 #laughteristhebestmedicine #laughsoyoudontcry #endometriosis  #endometriosisawareness #endowarrior #endometriosissurgery #adenomyosis #adenomyosisawareness #adenomyosiswarrior
20 0 22 February, 2020

Almost 51 and still going strong!! Trying to get this post holiday body back in shape!! #osteoarthritis #hysterectomy #adenomyosis #survivor #ageisjustanumber #lowcarb

Almost 51 and still going strong!! Trying to get this post holiday body back in shape!! #osteoarthritis #hysterectomy #adenomyosis #survivor #ageisjustanumber #lowcarb
14 2 22 February, 2020

Today I am nine months post expert excision and other procedure (PSN, hernia repairs, etc.) for endometriosis.
.
Good Things:
❤ As I shared in a previous post, I have secured accommodations at my workplace under the ADA.
❤ While my estrogen level is still not quite where we’d like it to be, it improved significantly from November to January after making some changes to my HRT, confirmed by bloodwork at my endocrinology appointment.
❤ Continuing to see improvement with my fussy sacrum and with my stabbing pelvic pain through PT.
❤ My sweet new niece and nephew!!!
.

Challenges:
😝 Honestly, this month has been incredibly hard, particularly because of work. I can’t discuss what’s going on and I hate to be cryptic but suffice to say my stress level has been incredibly high and that has been a huge blow in terms of my fatigue.
😝 I had two pretty significant backslides with my symptoms this month. One was a few weeks ago with my musculoskeletal stuff at PT, and then the other was this week with an onslaught of odd symptoms I don’t usually have. The latter may have been due to a delay in my birth control this month (pharmacy/doc miscommunication). It’s frustrating and a little scary when that happens, but hopefully it will all calm down soon.
😝 I’m pretty sure that the position I was in during surgery aggravated my old neck and shoulder issues. My arm was numb for over a day after surgery and my issues have been exacerbated, but still fairly well-controlled since until the last week or two. I’ve been having a lot of my cervicogenic headaches and pain in my neck and shoulder.
😝 Along with all of that, my workouts have slipped away yet again because honestly, I’m way too damn tired to lift even my super-light weights. It’s incredibly disappointing, yet I also don’t have the energy to be upset about it. One unfortunate thing that comes with living in a larger body is that you feel like people are always secretly waiting for you to give up on working out and think you’re making excuses when you don’t, so that just feels like yet another area in my life where no one believes me.
😝 Mental health = still struggling, tremendously

Today I am nine months post expert excision and other procedure (PSN, hernia repairs, etc.) for endometriosis.
.
Good Things:
❤ As I shared in a previous post, I have secured accommodations at my workplace under the ADA.
❤ While my estrogen level is still not quite where we’d like it to be, it improved significantly from November to January after making some changes to my HRT, confirmed by bloodwork at my endocrinology appointment.
❤ Continuing to see improvement with my fussy sacrum and with my stabbing pelvic pain through PT.
❤ My sweet new niece and nephew!!!
.

Challenges:
😝 Honestly, this month has been incredibly hard, particularly because of work. I can’t discuss what’s going on and I hate to be cryptic but suffice to say my stress level has been incredibly high and that has been a huge blow in terms of my fatigue.
😝 I had two pretty significant backslides with my symptoms this month. One was a few weeks ago with my musculoskeletal stuff at PT, and then the other was this week with an onslaught of odd symptoms I don’t usually have. The latter may have been due to a delay in my birth control this month (pharmacy/doc miscommunication). It’s frustrating and a little scary when that happens, but hopefully it will all calm down soon.
😝 I’m pretty sure that the position I was in during surgery aggravated my old neck and shoulder issues. My arm was numb for over a day after surgery and my issues have been exacerbated, but still fairly well-controlled since until the last week or two. I’ve been having a lot of my cervicogenic headaches and pain in my neck and shoulder.
😝 Along with all of that, my workouts have slipped away yet again because honestly, I’m way too damn tired to lift even my super-light weights. It’s incredibly disappointing, yet I also don’t have the energy to be upset about it. One unfortunate thing that comes with living in a larger body is that you feel like people are always secretly waiting for you to give up on working out and think you’re making excuses when you don’t, so that just feels like yet another area in my life where no one believes me.
😝 Mental health = still struggling, tremendously
66 14 22 February, 2020

Our North, and Mid Wales members gathered in Colwyn Bay today to take part in 'Measuring The Mountain' - a Welsh Government funded project to collate citizens' experiences of health and social care in Wales.
.
It was a really empowering day with many moving stories being shared. We look forward to seeing the results being published!
.
.
#FTWW #MeasuringTheMountain #WomensHealth #Wales #PatientVoice #PublicEngagement #NorthWales #WelshGovernment #healthandsocialcare #volunteers  #equality #ColwynBay #lobbying  #campaigning  #advocates  #chronicpain #endometriosis  #adenomyosis  #chronicillness  #miscarriage  #infertility #ehlersdanlossyndrome  #strongwomen #perinatalmentalhealth  #autism  #mentalhealth  #invisibleillness

Our North, and Mid Wales members gathered in Colwyn Bay today to take part in 'Measuring The Mountain' - a Welsh Government funded project to collate citizens' experiences of health and social care in Wales.
.
It was a really empowering day with many moving stories being shared. We look forward to seeing the results being published!
.
.
#FTWW #MeasuringTheMountain #WomensHealth #Wales #PatientVoice #PublicEngagement #NorthWales #WelshGovernment #healthandsocialcare #volunteers #equality #ColwynBay #lobbying #campaigning #advocates #chronicpain #endometriosis #adenomyosis #chronicillness #miscarriage #infertility #ehlersdanlossyndrome #strongwomen #perinatalmentalhealth #autism #mentalhealth #invisibleillness
17 1 22 February, 2020


22/02/2020:⁣
She's exhausted at the moment, physically and emotionally. I keep having flares of angriness which then make her sad. I'm in a vicious cycle of craving certain foods, enjoying them whilst ignoring the fact that they trigger her endo bloat and then starting all over again. So she tries to sleep as much as possible, I think it makes her forget the pain. ⁣

#endometriosis #endo #endosisters #uterusproblems #womenwithendometriosis #endobelly #period⁣⁣⁣⁣
#fuckendo #endowarrior #chronicpain #spoonie #endometriosissupport #endosisterhood  #1in10 #endometriosisawareness #endoawareness #adenomyosis #womenwithadenomyosis #thisisendo  #womenshealth #adenomyosisawareness #chronicillness #angryvagina #invisibleillness #menstrualhealth #uterusproblems #reproductivehealth #spooniesupport #wombwisdom

⁣
22/02/2020:⁣
She's exhausted at the moment, physically and emotionally. I keep having flares of angriness which then make her sad. I'm in a vicious cycle of craving certain foods, enjoying them whilst ignoring the fact that they trigger her endo bloat and then starting all over again. So she tries to sleep as much as possible, I think it makes her forget the pain. ⁣
⁣
#endometriosis #endo #endosisters #uterusproblems #womenwithendometriosis #endobelly #period⁣⁣⁣⁣
#fuckendo #endowarrior  #chronicpain #spoonie #endometriosissupport #endosisterhood #1in10 #endometriosisawareness #endoawareness #adenomyosis #womenwithadenomyosis #thisisendo #womenshealth #adenomyosisawareness #chronicillness #angryvagina #invisibleillness #menstrualhealth #uterusproblems #reproductivehealth  #spooniesupport #wombwisdom⁣
16 0 22 February, 2020

A sleepy day on the sofa, no people, just me, kitties and my favourite movies. A heck of a lot of painkillers, dark chocolate and hotties 😂 made the adenomyosis tolerable. Bath will follow #adenomyosis #kitties #avoidingpeople #pmdd #fatigue #80sand90smovies #selfcare

A sleepy day on the sofa, no people, just me, kitties and my favourite movies. A heck of a lot of painkillers, dark chocolate and hotties 😂 made the adenomyosis tolerable. Bath will follow #adenomyosis #kitties #avoidingpeople #pmdd #fatigue #80sand90smovies #selfcare
10 0 22 February, 2020
You have permission to not be ok.⁣
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You have permission to need time to yourself.⁣
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You have permission to heal.⁣
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Double tap if you’re giving yourself permission today.⁣
Comic by @howdoyouadult ⁣
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#pmdd #pmddpeeps #premenstrualdysphoricdisorder #pmddsupport #iapmd #menstruation #pmddawareness #pmddsupport #premenstrualdysphoricdisorder #periodproblems #pmsproblems #menstrualcycle #menstruation #menstrualhealth #endometriosis #endosisters #endowarrior #pcos #fibroids #adenomyosis #yougotthis #mentalhealth #womenshealth #womenempowerment #womensupportingwomen #femalehealth #reproductivehealth #motivationmonday #mondaymood
33 0 22 February, 2020

𝗪𝐡𝐚𝐭 𝐢𝐬 𝐞𝐧𝐝𝐨𝐦𝐞𝐭𝐫𝐢𝐨𝐬𝐢𝐬?⁣

Endometriosis is when the tissue that makes up the uterine lining (the lining of the womb) is present on other organs inside your body. Endometriosis is usually found in the lower abdomen, or pelvis, but can appear anywhere in the body. Endometriosis affects about 1 in 10 women throughout their reproductive years.⁣

Women tend to experience pain and discomfort during that “time of the month,” but some go through much more severe symptoms than just the average symptoms of PMS.⁣

Typical symptoms of endometriosis include lower abdominal pain, pain with periods, pain with sexual intercourse, and may even cause infertility issues.⁣ ⁣
𝗪𝐡𝐚𝐭 𝐫𝐨𝐥𝐞 𝐜𝐚𝐧 𝐂𝐁𝐃 𝐩𝐥𝐚𝐲 𝐢𝐧 𝐭𝐫𝐞𝐚𝐭𝐢𝐧𝐠 𝐭𝐡𝐞 𝐬𝐲𝐦𝐩𝐭𝐨𝐦𝐬 𝐫𝐞𝐥𝐚𝐭𝐞𝐝 𝐭𝐨 𝐞𝐧𝐝𝐨𝐦𝐞𝐭𝐫𝐢𝐨𝐬𝐢𝐬?⁣

Research suggests that the endocannabinoid system is involved in uterine function, and cannabinoids may be able to relieve pain associated with endometriosis.⁣

Pain generally stems from inflammation or nerve pain, including pain from endometriosis. Cannabinoids like CBD are known to reduce inflammation and can help alleviate pain with little to no adverse effects on uterine function and health.⁣

Targeting the endocannabinoid system in an effort to treat endometriosis-associated pain provides some real promise in the development of a more natural yet effective treatment for pain suffered as a result of endometriosis, as well as other medical conditions.⁣

#womenshealth #endometriosis #endosisters #ivf #invisibleillness #chronicpain #cbd #cannabis#adenomyosis #fibromyalgia #fertility #hysterectomy#fibroids #endopain#endometriosiswarrior #endostrong #anxiety#endometriosissucks #endometriosissupport#cbd #endobelly #pregnancy #women #womenshealth #mentalhealth #wellness #healthy #body

𝗪𝐡𝐚𝐭 𝐢𝐬 𝐞𝐧𝐝𝐨𝐦𝐞𝐭𝐫𝐢𝐨𝐬𝐢𝐬?⁣
⁣
Endometriosis is when the tissue that makes up the uterine lining (the lining of the womb) is present on other organs inside your body. Endometriosis is usually found in the lower abdomen, or pelvis, but can appear anywhere in the body. Endometriosis affects about 1 in 10 women throughout their reproductive years.⁣
⁣
Women tend to experience pain and discomfort during that “time of the month,” but some go through much more severe symptoms than just the average symptoms of PMS.⁣
⁣
Typical symptoms of endometriosis include lower abdominal pain, pain with periods,  pain with sexual intercourse, and may even cause infertility issues.⁣ ⁣
𝗪𝐡𝐚𝐭 𝐫𝐨𝐥𝐞 𝐜𝐚𝐧 𝐂𝐁𝐃  𝐩𝐥𝐚𝐲 𝐢𝐧 𝐭𝐫𝐞𝐚𝐭𝐢𝐧𝐠 𝐭𝐡𝐞 𝐬𝐲𝐦𝐩𝐭𝐨𝐦𝐬 𝐫𝐞𝐥𝐚𝐭𝐞𝐝 𝐭𝐨 𝐞𝐧𝐝𝐨𝐦𝐞𝐭𝐫𝐢𝐨𝐬𝐢𝐬?⁣
⁣
Research suggests that the endocannabinoid system is involved in uterine function, and cannabinoids may be able to relieve pain associated with endometriosis.⁣
⁣
Pain generally stems from inflammation or nerve pain, including pain from endometriosis. Cannabinoids like CBD are known to reduce inflammation and can help alleviate pain with little to no adverse effects on uterine function and health.⁣
⁣
Targeting the endocannabinoid system in an effort to treat endometriosis-associated pain provides some real promise in the development of a more natural yet effective treatment for pain suffered as a result of endometriosis, as well as other medical conditions.⁣
⁣
#womenshealth #endometriosis #endosisters #ivf #invisibleillness #chronicpain #cbd #cannabis ⁣#adenomyosis #fibromyalgia #fertility #hysterectomy⁣ #fibroids #endopain⁣ #endometriosiswarrior #endostrong #anxiety ⁣#endometriosissucks #endometriosissupport ⁣#cbd #endobelly #pregnancy #women #womenshealth #mentalhealth #wellness #healthy #body
20 0 22 February, 2020

Did you know that your surgeon can deny you the right to choose your own medical procedure?

I learned this the hard way after being denied a medically necessary hysterectomy for severe adenomyosis— just because of my age.

That is why I created a petition that is being sent to Senator Elizabeth Warren, Senator Mitt Romney, and other endometriosis allies in the US Government.
This petition aims to demand the end of legal medical abuse against adult women needing and wanting access to safe hysterectomies.
Medical abuse is defined as “any action or failure to act which causes unreasonable suffering, misery or harm to the patient.” The refusal to perform hysterectomies that remove disease (or refusal/failure to refer their patient to a surgeon who is able) on adult women who are informed of the risks of the procedure is downright criminal. #MyBodyMyChoice should extend to medical care regarding the removal of diseased organs.
Please consider reading our petition to find out more. The link is in my bio. I myself and many women like me could use your support.

Thank you for your time and consideration. 🎗❤️

Did you know that your surgeon can deny you the right to choose your own medical procedure?

I learned this the hard way after being denied a medically necessary hysterectomy for severe adenomyosis— just because of my age.

That is why I created a petition that is being sent to Senator Elizabeth Warren, Senator Mitt Romney, and other endometriosis allies in the US Government. 
This petition aims to demand the end of legal medical abuse against adult women needing and wanting access to safe hysterectomies. 
Medical abuse is defined as “any action or failure to act which causes unreasonable suffering, misery or harm to the patient.” The refusal to perform hysterectomies that remove disease (or refusal/failure to refer their patient to a surgeon who is able) on adult women who are informed of the risks of the procedure is downright criminal.  #MyBodyMyChoice should extend to medical care regarding the removal of diseased organs. 
Please consider reading our petition to find out more.  The link is in my bio.  I myself and many women like me could use your support.

Thank you for your time and consideration. 🎗❤️
26 9 22 February, 2020

🎗️ Les Invisibles 🎗️
Kristina 22 ans, « ce qui m'hallucine un peu : on en parle de plus en plus mais on nous écoute de moins en moins »
🙏💛
J-7 nous sommes à 4000 sur un objectif de 6000 ! Soutenez nous sur kisskissbankbank (lien en bio) et rendons visible l’invisible !

🎗️ Les Invisibles 🎗️
Kristina 22 ans, « ce qui m'hallucine un peu : on en parle de plus en plus mais on nous écoute de moins en moins »
🙏💛
J-7 nous sommes à 4000 sur un objectif de 6000 ! Soutenez nous sur kisskissbankbank (lien en bio) et rendons visible l’invisible !
99 1 22 February, 2020

Think you may have #ENDOMETRIOSIS or #ADENOMYOSIS ? Know someone who does?

Come out to #AtlantaEndoExpo on March 28th! People traveling from all over the US for this incredible #EndometriosisAwareness & #AdenomyosisAwareness event!

One of the only adenomyosis events in the world!
Largest #Endo gathering in the south! Over 400 tickets already claimed!

Follow @AtlantaENDOcommunity

Think you may have #ENDOMETRIOSIS or #ADENOMYOSIS ? Know someone who does?

Come out to #AtlantaEndoExpo on March 28th! People traveling from all over the US for this incredible #EndometriosisAwareness & #AdenomyosisAwareness event!

One of the only adenomyosis events in the world!
Largest #Endo gathering in the south! Over 400 tickets already claimed!

Follow @AtlantaENDOcommunity
4 2 22 February, 2020

Share!!! Go RSVP for #AtlantaEndoExpo now!! https://facebook.com/events/s/atlanta-endo-expo-2020/450950555510215/?ti=cl
(clickable link in bio)

Browse our photos to see our events from the past THREE years! Largest #Endometriosis gathering in the south!

Endometriosis specialists on site!

Email Atlantaendometriosiscommunity@gmail.com for SPONSORSHIP PACKAGE/Vendor inquiries!!

Share!!! Go RSVP for #AtlantaEndoExpo now!! https://facebook.com/events/s/atlanta-endo-expo-2020/450950555510215/?ti=cl
(clickable link in bio)

Browse our photos to see our events from the past THREE years! Largest #Endometriosis gathering in the south!

Endometriosis specialists on site!

Email Atlantaendometriosiscommunity@gmail.com for SPONSORSHIP PACKAGE/Vendor inquiries!!
26 2 22 February, 2020

FREE #endometriosisawarenessmonth poster download (IG link in bio) (We’ll mail you hard copies if you’d prefer! Send a small donation, send your full address, and skip the printing!)
💛💛💛💛💛💛💛
#endometriosis #getreadywithme #endo #endowarrior #chronicillness #adenomyosis #yellow #goodcause #timesup
https://endofendoproject.org/downloads/

FREE #endometriosisawarenessmonth poster download (IG link in bio) (We’ll mail you hard copies if you’d prefer! Send a small donation, send your full address, and skip the printing!)
💛💛💛💛💛💛💛
#endometriosis #getreadywithme #endo #endowarrior #chronicillness #adenomyosis #yellow #goodcause #timesup 
https://endofendoproject.org/downloads/
80 0 22 February, 2020

Top #adenomyosis posts

“𝔸𝕟𝕪𝕠𝕟𝕖 𝕔𝕒𝕟 𝕗𝕒𝕜𝕖 𝕚𝕝𝕝𝕟𝕖𝕤𝕤. 𝔹𝕦𝕥 𝕚𝕥 𝕥𝕒𝕜𝕖𝕤 𝕣𝕖𝕒𝕝 𝕤𝕥𝕣𝕖𝕟𝕘𝕥𝕙 𝕥𝕠 𝕗𝕒𝕜𝕖 𝕨𝕖𝕝𝕝𝕟𝕖𝕤𝕤.”
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So what’s the difference here? ...There isn’t one. Many of us in #chronicpain are quite skilled at hiding the pain and faking wellness. True story.
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How will you know who is in pain or how much? You probably won’t unless that person tells you. And when they do.. that should be taken seriously. Most of us that experience chronic pain won’t even mention pain until it’s increased to the point of complete discomfort.
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The same applies to #chronicillness and symptoms associated with a disease or condition.
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#chronicpainawareness #chronicpainwarrior #chronicillnessawareness #chroniclife #autoimmunedisease #dysautonomia #endometriosis #fibromyalgia #spinalfusion #spondylosis #adenomyosis #degenerativediscdisease #chronicpaincommunity #spoonie #interstitialcystitis #defeatpain #staystrong #infertility

“𝔸𝕟𝕪𝕠𝕟𝕖 𝕔𝕒𝕟 𝕗𝕒𝕜𝕖 𝕚𝕝𝕝𝕟𝕖𝕤𝕤. 𝔹𝕦𝕥 𝕚𝕥 𝕥𝕒𝕜𝕖𝕤 𝕣𝕖𝕒𝕝 𝕤𝕥𝕣𝕖𝕟𝕘𝕥𝕙 𝕥𝕠 𝕗𝕒𝕜𝕖 𝕨𝕖𝕝𝕝𝕟𝕖𝕤𝕤.”
.
So what’s the difference here? ...There isn’t one. Many of us in #chronicpain are quite skilled at hiding the pain and faking wellness. True story.
.
How will you know who is in pain or how much? You probably won’t unless that person tells you. And when they do.. that should be taken seriously. Most of us that experience chronic pain won’t even mention pain until it’s increased to the point of complete discomfort.
.
The same applies to #chronicillness and symptoms associated with a disease or condition.
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#chronicpainawareness #chronicpainwarrior #chronicillnessawareness #chroniclife #autoimmunedisease #dysautonomia #endometriosis #fibromyalgia #spinalfusion #spondylosis #adenomyosis  #degenerativediscdisease #chronicpaincommunity #spoonie #interstitialcystitis #defeatpain #staystrong #infertility
2,028 130 27 December, 2019

💜ADENOMYOSIS!💜
Adenomyosis exists too!! The awareness getting out for endometriosis is so great, necessary and needed and I’m so happy about it! But Adenomyosis deserves the same recognition. So what is Adenomyosis?
Adenomyosis is a condition where the endometrial cells from the lining of the uterus grow into the muscle wall of the uterus. When the monthly cycle occurs, the lining breaks down and bleeds but the disease causes blood to get trapped in the myometrium which causes an enlarged, hard and bumpy uterus. The symptoms of Adenomyosis are very similar to Endometriosis such as:
- extreme menstrual pain
- pain at ANY TIME of the month (for a lot, daily!)
- excessive bleeding and for a prolonged time, typically 7+ days - bloating
- bowel and bladder pain/trouble - painful intercourse - infertility - fatigue, nausea, vomiting, anaemia, migraines
The areas of pain are felt differently for everyone, but a few signs are: - pelvic contraction-like pain. Many have said their pain is worse than labour pain
- pain radiating down legs and back
- chest and difficulty breathing - head, headaches migraines - WIDESPREAD! For many the pain is felt in their entire body
If you have had a laparoscopy and they didn’t find any endometriosis, KEEP FIGHTING! Because chances are you probably have Adenomyosis, it’s just a lot harder to get diagnosed with unfortunately. Diagnosis is made by an MRI, seen by laparoscopy and after hysterectomy. 40-70% of women with endo also have adeno.
#adeno #adenomyosis #adenomyosisawareness #adenomyosiswarrior #adenomyosissucks #endo #endometriosis #women #womenshealth #spoonie #chronic #chronicdisease #chronicillness #chronicillnesswarrior #warrior #fibro #fibromyalgia #scoliosis #endometriosisawareness #fatigue #mentalhealth

💜ADENOMYOSIS!💜
Adenomyosis exists too!! The awareness getting out for endometriosis is so great, necessary and needed and I’m so happy about it! But Adenomyosis deserves the same recognition. So what is Adenomyosis?
Adenomyosis is a condition where the endometrial cells from the lining of the uterus grow into the muscle wall of the uterus. When the monthly cycle occurs, the lining breaks down and bleeds but the disease causes blood to get trapped in the myometrium which causes an enlarged, hard and bumpy uterus. The symptoms of Adenomyosis are very similar to Endometriosis such as:
- extreme menstrual pain
- pain at ANY TIME of the month (for a lot, daily!)
- excessive bleeding and for a prolonged time, typically 7+ days - bloating
- bowel and bladder pain/trouble - painful intercourse - infertility - fatigue, nausea, vomiting, anaemia, migraines
The areas of pain are felt differently for everyone, but a few signs are: - pelvic contraction-like pain. Many have said their pain is worse than labour pain
- pain radiating down legs and back
- chest and difficulty breathing - head, headaches migraines - WIDESPREAD! For many the pain is felt in their entire body
If you have had a laparoscopy and they didn’t find any endometriosis, KEEP FIGHTING! Because chances are you probably have Adenomyosis, it’s just a lot harder to get diagnosed with unfortunately. Diagnosis is made by an MRI, seen by laparoscopy and after hysterectomy. 40-70% of women with endo also have adeno.
#adeno #adenomyosis #adenomyosisawareness #adenomyosiswarrior #adenomyosissucks #endo #endometriosis #women #womenshealth #spoonie #chronic #chronicdisease #chronicillness #chronicillnesswarrior #warrior #fibro #fibromyalgia #scoliosis #endometriosisawareness #fatigue #mentalhealth
1,106 123 18 December, 2019

Neither one of us could have ever guessed almost 5 years into #marriage this is where we’d be.

I’ve seen the post of heartbroken sisters, lived through the fights no one prepared us for, and have felt the void of help for couples living with #endometriosis!

None of this has been easy but it’s not lost on me how blessed I am to have a partner willing to try to figure it out with me.

When my symptoms started taking over my life #endo wasn’t even on my radar. So knowing what was to come or how to prepare was like trying to predict Florida weather... in January.

It’s something that I don’t hear talked about in the #endocommunity very often but I truly feel the need is there.

I don’t want you to have to stumble through the pitch black darkness like we did. I always feel like what I go through isn’t just for me, that it’s for a bigger purpose, and can help all my sister girls.

My biggest suggestion is to work on #communication- things change in ways neither one of you will be equipped to handle and it can be easy to assume you know what the other is thinking.

In #chronicillness everything goes out the window and you literally have to figure out how to live again. The weight of that is heavy and tending to the core of your relationship can go right out the window too.

When roles change and your beloved becomes your caretaker a bond is created like no other. If we let it, the struggles can bring us closer together. An entire new level of intimacy can be created.

Starting with open and honest conversations, especially in the midst of doctor’s appointments and fighting for a diagnosis.

Communicate how your physically feeling.
-It can be difficult for a man to understand because of our anatomical differences so it’s crucial that you’re able to describe how you’re feeling.

Communicate your fears.
-Endo has a way of eating at your self worth and image, which if left to stew, can turn into serious insecurities that your partner may not understand.

Communicate in the bedroom!
#Painfulsex is a very common symptom. Instead of fearing pain or shutting down, TALK about ways to find pleasure again.
#endowarrior #endohusband #endosisters #1in10 #intimacy #adenomyosis

Neither one of us could have ever guessed almost 5 years into #marriage this is where we’d be.

I’ve seen the post of heartbroken sisters, lived through the fights no one prepared us for, and have felt the void of help for couples living with #endometriosis!

None of this has been easy but it’s not lost on me how blessed I am to have a partner willing to try to figure it out with me.

When my symptoms started taking over my life #endo wasn’t even on my radar. So knowing what was to come or how to prepare was like trying to predict Florida weather... in January.

It’s something that I don’t hear talked about in the #endocommunity very often but I truly feel the need is there.

I don’t want you to have to stumble through the pitch black darkness like we did. I always feel like what I go through isn’t just for me, that it’s for a bigger purpose, and can help all my sister girls.

My biggest suggestion is to work on #communication- things change in ways neither one of you will be equipped to handle and it can be easy to assume you know what the other is thinking.

In #chronicillness everything goes out the window and you literally have to figure out how to live again. The weight of that is heavy and tending to the core of your relationship can go right out the window too.

When roles change and your beloved becomes your caretaker a bond is created like no other. If we let it, the struggles can bring us closer together. An entire new level of intimacy can be created.

Starting with open and honest conversations, especially in the midst of doctor’s appointments and fighting for a diagnosis.

Communicate how your physically feeling.
-It can be difficult for a man to understand because of our anatomical differences so it’s crucial that you’re able to describe how you’re feeling.

Communicate your fears.
-Endo has a way of eating at your self worth and image, which if left to stew, can turn into serious insecurities that your partner may not understand.

Communicate in the bedroom!
#Painfulsex is a very common symptom. Instead of fearing pain or shutting down, TALK about ways to find pleasure again.
#endowarrior #endohusband #endosisters #1in10 #intimacy #adenomyosis
203 17 11 February, 2020

Can I get a “HELLLL YEAHHHHHH”?! 👊🏻👊🏻👊🏻This one is for all my cysters with an invisible illness. 💛💛💛 #endogirlgang
Image @handsomegirldesigns

Can I get a “HELLLL YEAHHHHHH”?! 👊🏻👊🏻👊🏻This one is for all my cysters with an invisible illness. 💛💛💛 #endogirlgang 
Image @handsomegirldesigns
1,161 30 17 January, 2020

The face you make when you get a DM from @ovira that verbatim says “Hello Jay, this is your uterus messaging you. Joking, but imagine if your uterus could slide into your DMs like we are right now” and then proceeds to market their period pain relieving product to me (Nope. Not a joke. This actually happened)....Pretty sure I no longer have a uterus, and pretty sure that more than 50% of my account is spent talking about that fact. It would have taken seconds to learn that about me. I’m not even mad at the “copy and paste” approach to messaging. What I am mad about is the lack of sensitivity, given the topic at hand. I have no issue with brands specifically marketing products to the endometriosis community. We’ll take anything we can to find something that provides even a glimpse of relief. My issue is this: if you’re going to use our demographic as a selling point, at least do your due diligence in learning the nuances and sensitivities that come along with us.

The face you make when you get a DM from @ovira that verbatim says “Hello Jay, this is your uterus messaging you. Joking, but imagine if your uterus could slide into your DMs like we are right now” and then proceeds to market their period pain relieving product to me (Nope. Not a joke. This actually happened)....Pretty sure I no longer have a uterus, and pretty sure that more than 50% of my account is spent talking about that fact. It would have taken seconds to learn that about me. I’m not even mad at the “copy and paste” approach to messaging. What I am mad about is the lack of sensitivity, given the topic at hand. I have no issue with brands specifically marketing products to the endometriosis community. We’ll take anything we can to find something that provides even a glimpse of relief. My issue is this: if you’re going to use our demographic as a selling point, at least do your due diligence in learning the nuances and sensitivities that come along with us.
446 133 21 February, 2020

Endo Belly. This is what most of us in the biz refer to our gigantic bloated tummies as, although at this stage I don't know if it's Endo Belly, Adeno Belly or all of the above. My tummy has been constantly bloated for about a month now, varying in size but always worse in the evening. You'd be forgiven for thinking this is diet-related and, because I get asked about this a lot, I'm going to clarify my situation. I've tried various diets and last year I saw a brilliant bowel specialist who confirmed I absolutely have IBS. Unfortunately there are no dietary triggers for this, it's most likely related to, well, this *points at various points on body*. All of my illnesses are linked to or made worse fron inflammation; endometriosis, adenomyosis, asthma, chronic migraine, fibromyalgia and ME. When my tummy is like this I have pain EVERYWHERE and struggle to breathe and sometimes even talk. My voice goes raspy and I can only take short breaths. I imagine it's what being mega pregnant is like but I wouldn't know, and never will. Good job I'm OK with that really, lots of people go through this when they're desperate to be parents, and that's so cruel. What a wild ride. I desperately hope that my hysterectomy will rid me of this immensely painful and uncomfortable tummy, and all of the horrible symptoms that come with it. I know it will cure adenomyosis, but I just don't know what impact it will have on everything else. Fingers crossed!🤞 24 days to go. As always, I'm not posting this for sympathy, I just hope it helps people learn a bit more about how these conditions are way more than just a bad period.✌️
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#endometriosis #endometriosisawareness #endosister #adenomyosis #adenomyosisawareness #endobelly #chronicillness #youdontlooksick #EndoWarrior #adenomyosissucks #adenomyosiswarrior #myuterushatesme #OperationYeeterus #hysterectomy #chronicpain #periodproblems #womenshealth #EndoCommunity

Endo Belly. This is what most of us in the biz refer to our gigantic bloated tummies as, although at this stage I don't know if it's Endo Belly, Adeno Belly or all of the above. My tummy has been constantly bloated for about a month now, varying in size but always worse in the evening. You'd be forgiven for thinking this is diet-related and, because I get asked about this a lot, I'm going to clarify my situation. I've tried various diets and last year I saw a brilliant bowel specialist who confirmed I absolutely have IBS. Unfortunately there are no dietary triggers for this, it's most likely related to, well, this *points at various points on body*. All of my illnesses are linked to or made worse fron inflammation; endometriosis, adenomyosis, asthma, chronic migraine, fibromyalgia and ME. When my tummy is like this I have pain EVERYWHERE and struggle to breathe and sometimes even talk. My voice goes raspy and I can only take short breaths. I imagine it's what being mega pregnant is like but I wouldn't know, and never will. Good job I'm OK with that really, lots of people go through this when they're desperate to be parents, and that's so cruel. What a wild ride. I desperately hope that my hysterectomy will rid me of this immensely painful and uncomfortable tummy, and all of the horrible symptoms that come with it. I know it will cure adenomyosis, but I just don't know what impact it will have on everything else. Fingers crossed!🤞 24 days to go. As always, I'm not posting this for sympathy, I just hope it helps people learn a bit more about how these conditions are way more than just a bad period.✌️
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#endometriosis #endometriosisawareness #endosister #adenomyosis #adenomyosisawareness #endobelly #chronicillness #youdontlooksick #EndoWarrior #adenomyosissucks #adenomyosiswarrior #myuterushatesme #OperationYeeterus #hysterectomy #chronicpain #periodproblems #womenshealth #EndoCommunity
120 40 27 January, 2020

Hopeful. Happy. Filter free. A little high. Surgery 6 is over and with all luck it will be my last.
#endometriosis #didntkillmeormakemestronger #adenomyosis #oneinten #oneinamillion

Hopeful. Happy. Filter free. A little high. Surgery 6 is over and with all luck it will be my last. 
#endometriosis #didntkillmeormakemestronger #adenomyosis #oneinten #oneinamillion
157 18 21 February, 2020

Couldn’t agree more. You know your body best. You know what’s normal. You know what’s abnormal. You know that your pain is real. Don’t let anyone tell you how to feel! 👊🏻👊🏻👊🏻 #endogirlgang
Image: @morethan_myuterus

Couldn’t agree more. You know your body best. You know what’s normal. You know what’s abnormal. You know that your pain is real. Don’t let anyone tell you how to feel! 👊🏻👊🏻👊🏻 #endogirlgang 
Image: @morethan_myuterus
484 9 17 January, 2020

Remember when I looked like this? Some days it really feels like my surgery has been such a long time ago already – other days it feels like just yesterday.
Because I’m still trying to figure out the results of my last doctor’s appointment I did not really feel like writing a deep personal blog post today. Instead I wrote down some tips concerning #endometriosissurgery that helped me afterwards and some I wish I knew before – the link to my blog is in my bio, as always. Hope you have a calm Sunday!💛
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#endometriose #endometriosis #adenomyose #adenomyosis #adenomyosisawareness #chronicillness #1in10 #endosister #endoawareness #endometriosisawareness #endosisters #endowarrior #endometriosissucks #inderregelbinichstark #endometriosissupport #endometriosisfighter

Remember when I looked like this? Some days it really feels like my surgery has been such a long time ago already – other days it feels like just yesterday. 
Because I’m still trying to figure out the results of my last doctor’s appointment I did not really feel like writing a deep personal blog post today. Instead I wrote down some tips concerning #endometriosissurgery that helped me afterwards and some I wish I knew before – the link to my blog is in my bio, as always. Hope you have a calm Sunday!💛
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#endometriose #endometriosis #adenomyose #adenomyosis #adenomyosisawareness #chronicillness #1in10 #endosister #endoawareness #endometriosisawareness #endosisters #endowarrior #endometriosissucks #inderregelbinichstark #endometriosissupport #endometriosisfighter
398 22 26 January, 2020