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rsd - 605.3k posts

    Hop in the coupe goin' crazy 🤟🏻🥵✨

    Hop in the coupe goin' crazy 🤟🏻🥵✨

    69 1 21 minutes ago
    @ncdotcom - Your negligence ruined my life. Things were looking up for me, but you all were called more than 2 hours prior to my car accident and never came. March 13, 2018. If you had actually come, I wouldn’t have:
-Totaled my car
-*Shattered* my ankle
-Needed one surgery (placing 4 screws) in an attempt to stabilize the shattered bone
-Had my bone die soon thereafter and begin crumbling inside of me
-Needed a second surgery to take out the dead bone and place a 3D replacement (which would have still kept me from ever participating in high-impact activities again, including running, martial arts, etc.)
-Developed a chronic pain condition called Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD) - an extremely debilitating + painful condition that has robbed me of my ability to walk
-Gotten into such a poor physical state that I had to withdraw from school and move back home.
-Etc.
If you all had come *anytime* within the 2+ hours from the Deputy’s phone call to my car accident, that black ice wouldn’t have been there. I would be able to walk, finishing my degree at UNC-Chapel Hill (where I was attending while on a full scholarship), and living a complete life. Now, I spend every day in bed and in tremendous pain... I haven’t walked in nearly 4 months - even prior requiring a post-surgical walking boot and only able to get to get to the bathroom or in/out of an appointment.
My entire life is just passing me by.... If you all had come anytime after you were called, after multiple complaints were made to the Sheriff’s office about that *specific* ramp, everything would be different.
Yes, I blame myself quite a bit for what happened, but that blame is misplaced. I was being safe and doing all that I could do... My car accident, and all that has happened thereafter, is on *you.* I wish there were a way to make it right... But I wouldn’t even know where to begin.

    @ncdotcom - Your negligence ruined my life. Things were looking up for me, but you all were called more than 2 hours prior to my car accident and never came. March 13, 2018. If you had actually come, I wouldn’t have:
    -Totaled my car
    -*Shattered* my ankle
    -Needed one surgery (placing 4 screws) in an attempt to stabilize the shattered bone
    -Had my bone die soon thereafter and begin crumbling inside of me
    -Needed a second surgery to take out the dead bone and place a 3D replacement (which would have still kept me from ever participating in high-impact activities again, including running, martial arts, etc.)
    -Developed a chronic pain condition called Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD) - an extremely debilitating + painful condition that has robbed me of my ability to walk
    -Gotten into such a poor physical state that I had to withdraw from school and move back home.
    -Etc.
    If you all had come *anytime* within the 2+ hours from the Deputy’s phone call to my car accident, that black ice wouldn’t have been there. I would be able to walk, finishing my degree at UNC-Chapel Hill (where I was attending while on a full scholarship), and living a complete life. Now, I spend every day in bed and in tremendous pain... I haven’t walked in nearly 4 months - even prior requiring a post-surgical walking boot and only able to get to get to the bathroom or in/out of an appointment.
    My entire life is just passing me by.... If you all had come anytime after you were called, after multiple complaints were made to the Sheriff’s office about that *specific* ramp, everything would be different.
    Yes, I blame myself quite a bit for what happened, but that blame is misplaced. I was being safe and doing all that I could do... My car accident, and all that has happened thereafter, is on *you.* I wish there were a way to make it right... But I wouldn’t even know where to begin.

    6 1 33 minutes ago
    Today on Instagram I have scrolled and seen someone get engaged, someone finish a DIY project on a house they just bought, newly weds move in together, someone climb a STEEP hill, and someone finish up their masters at school. ⁣
⁣
Today I woke up confused as to why I was in my bed and not a hospital bed because I’d dreamed of a really bad stomach flare. I went and got my port flushed, spent my day off and on wondering if it’s just that time of the month or if my bladder has but spasmd so bad Its just blood coming out from there. On a whim, I decide to go to the 12pm water aerobics class (class level: I’m the youngest by a good 30 years in there) where I processed to crash at the end, sit in my car as the fatigue set in and try and muster strength to get home.  Now I’m laying in bed hoping a nap will restore some energy to do anything, and while I scroll through my insta and see all those INCREDIBLE accomplishments others are doing, I feel pretty dang proud of myself for what I did today as well!!!⁣
⁣
I’m the first to let the comparison game be a thief of my joy, but what I realized is, last week I was in so much pain and so depressed I felt like I couldn’t even keep my head above water. Today I was up, able to drive, ABLE TO WORKOUT, able to consciously make myself a health meal, and remember to take all my meds. All things that benefit me, all things that benefit my health. ⁣
⁣
If you’re feeling down, stop looking at others, and remember how you’ve bettered yourself today! ⁣
⁣
𝐃𝐢𝐟𝐟𝐞𝐫𝐞𝐧𝐭 𝐬𝐭𝐫𝐨𝐤𝐞𝐬 𝐟𝐨𝐫 𝐝𝐢𝐟𝐟𝐞𝐫𝐞𝐧𝐭 𝐟𝐨𝐥𝐤𝐬 𝐦𝐲 𝐟𝐫𝐢𝐞𝐧𝐝𝐬!! #bepainfullypositive #napsarelife #comparisonisthethiefofjoy #feelingaccomplished #accomplishments ⁣#crps #interstitialcystitis #rsd #chronicillness #chronicpain #fatigue #invisibleillness #spoonielife #spoonie #port #portacath #workout #wateraerobics #health 
#depression #joy

    Today on Instagram I have scrolled and seen someone get engaged, someone finish a DIY project on a house they just bought, newly weds move in together, someone climb a STEEP hill, and someone finish up their masters at school. ⁣

    Today I woke up confused as to why I was in my bed and not a hospital bed because I’d dreamed of a really bad stomach flare. I went and got my port flushed, spent my day off and on wondering if it’s just that time of the month or if my bladder has but spasmd so bad Its just blood coming out from there. On a whim, I decide to go to the 12pm water aerobics class (class level: I’m the youngest by a good 30 years in there) where I processed to crash at the end, sit in my car as the fatigue set in and try and muster strength to get home. Now I’m laying in bed hoping a nap will restore some energy to do anything, and while I scroll through my insta and see all those INCREDIBLE accomplishments others are doing, I feel pretty dang proud of myself for what I did today as well!!!⁣

    I’m the first to let the comparison game be a thief of my joy, but what I realized is, last week I was in so much pain and so depressed I felt like I couldn’t even keep my head above water. Today I was up, able to drive, ABLE TO WORKOUT, able to consciously make myself a health meal, and remember to take all my meds. All things that benefit me, all things that benefit my health. ⁣

    If you’re feeling down, stop looking at others, and remember how you’ve bettered yourself today! ⁣

    𝐃𝐢𝐟𝐟𝐞𝐫𝐞𝐧𝐭 𝐬𝐭𝐫𝐨𝐤𝐞𝐬 𝐟𝐨𝐫 𝐝𝐢𝐟𝐟𝐞𝐫𝐞𝐧𝐭 𝐟𝐨𝐥𝐤𝐬 𝐦𝐲 𝐟𝐫𝐢𝐞𝐧𝐝𝐬!! #bepainfullypositive #napsarelife #comparisonisthethiefofjoy #feelingaccomplished #accomplishments#crps #interstitialcystitis #rsd #chronicillness #chronicpain #fatigue #invisibleillness #spoonielife #spoonie #port #portacath #workout #wateraerobics #health
    #depression #joy

    8 1 43 minutes ago
    Se você tem uma pick up e está cansado de ter dor de cabeça com Transbike, conheça os nossos TruckPad da RSD. Leve até 5 bikes de forma prática e segura. Vendas no 86994051361
.
.
#bike #rsd #truckpad #mtb #

    Se você tem uma pick up e está cansado de ter dor de cabeça com Transbike, conheça os nossos TruckPad da RSD. Leve até 5 bikes de forma prática e segura. Vendas no 86994051361
    .
    .
    #bike #rsd #truckpad #mtb #

    19 1 2 hours ago
    We're excited to announce that our debut full-length album, "In The In Between", is AVAILABLE NOW EXCLUSIVELY at TowneMusic.com!

This album marks a milestone that we've worked our entire careers to reach and we just can't wait to get it into your hands and onto your stereo speakers. 
Thank you to everyone that's helped make this dream possible and that has stood by us and never stopped believing in us over the years.

We hope you love this album as much as we do. It's your's now.

xo,
Steevie, Jon, & Luke
#linkinbio

    We're excited to announce that our debut full-length album, "In The In Between", is AVAILABLE NOW EXCLUSIVELY at TowneMusic.com!

    This album marks a milestone that we've worked our entire careers to reach and we just can't wait to get it into your hands and onto your stereo speakers.
    Thank you to everyone that's helped make this dream possible and that has stood by us and never stopped believing in us over the years.

    We hope you love this album as much as we do. It's your's now.

    xo,
    Steevie, Jon, & Luke
    #linkinbio

    50 4 7 hours ago
    Having a chronic illness is so hard. It's something that very few really understand and can often leave you feeling lonely and misunderstood. However, it makes finding friends who share in your suffering so much sweeter. I am so thankful for these two sweet friends who made my not so great cardiologist appointment so much better by meeting us while we were in Toledo to catch up and spend some time together. I met Cori at the Ronald McDonald House at the Cleveland clinic and Kristin and I did our stem cell treatments together! I am so thankful that God has put these two amazing people in my life. 
Cardiologist update:
My cardiologist was pretty disappointed/concerned about how high my heart rate has been and the fluctuations in my blood pressure. We think that these infections have just taken a large toll on my body and it will just take some time for it to recover🤷🏼‍♀️. He bumped up my heart meds to hopefully bring my heart rate down and is running a few tests just to make sure we aren't missing anything. I also have an endoscopy this week(I'm skipping over to GI now). I'm not really expecting much from it, but my doctors wanted me to have another GI workup done before we moved forward with MALS surgery. Speaking of... I have an appointment with a new MALS surgeon in Tennessee at the end of September. This doctor does the surgery differently and we are hoping that that means a higher success rate. The doctor in Chicago gives me a 50/50 chance as to whether or not it works. He has said that it would be a higher percentage if I didn't have so much else going on, but since MALS isn't my only issue it complicates things. Long story short, I’m hoping that this Tennessee doctor can give me a higher success rate/better outcome with his approach to surgery. I am praying for wisdom and discernment through this process because to be honest making a big decision like this really stresses me out. So I am trusting that God will give me complete peace about one choice. And, even though it won’t be a quick fix, I am hopeful that this next step will help me move forward health wise.

    Having a chronic illness is so hard. It's something that very few really understand and can often leave you feeling lonely and misunderstood. However, it makes finding friends who share in your suffering so much sweeter. I am so thankful for these two sweet friends who made my not so great cardiologist appointment so much better by meeting us while we were in Toledo to catch up and spend some time together. I met Cori at the Ronald McDonald House at the Cleveland clinic and Kristin and I did our stem cell treatments together! I am so thankful that God has put these two amazing people in my life.
    Cardiologist update:
    My cardiologist was pretty disappointed/concerned about how high my heart rate has been and the fluctuations in my blood pressure. We think that these infections have just taken a large toll on my body and it will just take some time for it to recover🤷🏼‍♀️. He bumped up my heart meds to hopefully bring my heart rate down and is running a few tests just to make sure we aren't missing anything. I also have an endoscopy this week(I'm skipping over to GI now). I'm not really expecting much from it, but my doctors wanted me to have another GI workup done before we moved forward with MALS surgery. Speaking of... I have an appointment with a new MALS surgeon in Tennessee at the end of September. This doctor does the surgery differently and we are hoping that that means a higher success rate. The doctor in Chicago gives me a 50/50 chance as to whether or not it works. He has said that it would be a higher percentage if I didn't have so much else going on, but since MALS isn't my only issue it complicates things. Long story short, I’m hoping that this Tennessee doctor can give me a higher success rate/better outcome with his approach to surgery. I am praying for wisdom and discernment through this process because to be honest making a big decision like this really stresses me out. So I am trusting that God will give me complete peace about one choice. And, even though it won’t be a quick fix, I am hopeful that this next step will help me move forward health wise.

    74 4 7 hours ago
    Sábado de aniversario en #RSD

    Sábado de aniversario en #RSD

    15 0 8 hours ago

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